The school district then had her evaluated and this time we qualified for OT 2x week and PT 2x week. The physical therapist had also recommended a neurology evaluation. What?!?! The neurologist we saw recommended an MRI because of the cyclical vomiting and the fact that we do not have a family history of migraines. Low and behold we have an abnormal MRI that shows very decreased myelin in Madison's brain. This is usually associated with multiple sclerosis but the neurologist doesnt seem to think that this is what this is-however the neurologist does not know anything about this and therefore we did lots of bloodwork and urine testing to make sure there wasn't any metabolic syndromes going on. There isn't. We saw the neurologist on Monday and she now wants us to go to Johns Hopkins and have an MRI with Madison under anesthesia with contrast and have a neurology consult there. We are unsure when this appointment will be-the neurologist is working on that. She says it may be a thing where they have an opening and we just have to go. There is travel, hotel, food, medical, etc. The stay could turn into a few days depending on how the appointments can be set up. Also the repeat visits and testing that follow. We just didn't want to not be able to go when they could see us because we didn't have the funds. Thanks so much!!!
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