After three months of debilitating symptoms, numerous doctors,specialists, medical testing, and fear of the unknown, Crystal was diagnosed with a vector-borne illness including Borrelia (Lyme) and 6 other co-infections on December 29th, 2017.
Crystal says, “Scared out of my mind I visited doctor after doctor. I laid in bed crying for days thinking am I going crazy? Why can't anyone help me? Finally, in desperation to find the answers, I started googling and advocating for my own health. Currently I am on my second intensive treatment (which I could be on for years) through a Lyme literate naturopath in BC while I wait for the 33 months waitlist for the only Lyme literate MD in Western Canada that would be covered through healthcare.”
On March 28th, 2018, the Scutt’s world came crashing down again as their little sweetheart, Nya, was also diagnosed with Lyme (an active Borrelia infection and probable Bartonella infection). After months of nauseousness, frequent headaches, dizzy spells and loss of appetite, Crystal and Jade thought it would be best if Nya was tested as well. They knew that waking up to see the garbage can beside her bed in the morning, almost once a week, was not normal.
Crystal says, “I would take on this disease 10 times over, if it would mean Nya did not have to face it. We hoped and prayed that this would not be true. Lyme can lead to cognitive delays, physical disabilities, neurological disorders and many more ailments. It is absolutely terrifying when it is your precious child.”
Currently Crystal’s appts and medication are $1100 a month and Nya’s are expected to be around $[phone redacted]. The Scutt’s would also like to try to get Nya to the pediatric Lyme specialist in Washington, DC who is $500/30 min just for the initial visits. Every appt they have $150-500/30 min.
The Scutts say, “Although, we as a family, are learning we might not ever fully beat this crazy disease, we know that there is hope. We would like to thank our loving family and amazing friends for your support with this nightmare that has changed our lives, in so many ways, in the blink of an eye.”
- Marcy & John Lavoie
- Karen Tremblay
- Christine Gradin
- Suzanne DeGroot
- Ahmad Mouhmoud
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