Chemo patient making ends meet

My name is Cynthia and was diagnosed with Stills disease in June 2010. A condition that affects 1 person out of a million. I was transported to Sierra Vista regional hospital where I stayed for 10 days, they had me quarantined because they thought I had meningitis. My condition kept getting worse and I remember having to say good bye to my babies because they were being taken to CA while I was dying in the hospital bed. I had spinal taps done while there and was on morphine every 6 hours because the pain was too severe. They finally told my mother that there was nothing else they could do for me and that they had to transfer me to a bigger hospital. I was transported to St. Mary's where I had many tests done all the while I was having fevers of 104.5 along with seizures every single day for my entire duration of 30 days in 3 hospitals. Last thing I remember was having them do a transjugular liver biopsy. They had my mother sign a waiver for an emergency liver transplant just in case it came to it. The nurse then told my mother "I am so sorry there is nothing else we can do for your daughter here but I promise you I will help in any way I can so she is no longer in pain. I've called the priest to come read her, her last rites and please prepare yourself for the worst" I was read my last rites by a Catholic priest while getting a plasma transfusion and waiting to be transported to UMC. At UMC the doctors worked hard in the process of elimination trying to find out what was slowly killing me. They were experimenting with different medicine, I was no longer able to walk on my own. I was using a walker and had to have my mother feed me and bathe me because the disease was eating away at my muscles. I remember being afraid to fall asleep for the fear that I would not wake up the next day. I wouldn't even take phone calls from my babies, all I had was their voice mails to me which to this day I listen to from time to time. I never thought that I would be fighting to stay alive at the age of 29. God spared me that day when the doctor came in and told my mother "I think we found what disease is killing her and we are going to start aggressive chemotherapy on her". I have chemo infusions every 5 weeks and will be doing it for the rest of my life. I have always been a working woman to help support my family even through all of my health issues including multiple surgeries these last 4 years. I worked for DoD for over 10 years but due to my husband being in the US Army, I had to leave my job and had to move & Im now having a hard time getting unemployment benefits. I feel like I am being denied any help Ive earned and worked for because of a health condition I never asked for. I try to be strong for my 2 kids who are 14 and 12, I try not to let it show of how much I worry about our financial situation but at times feel hopeless when door after door just seems to be closed to me.I've never asked for help. My rheumatologist suggested a medication called methotrexate to slow down my deformation process. I researched it and the side effects are worse than the benefits. All I can hope for is that God allows me to find a silver lining in everything that is happening to me. I don't think its fair to my 2 children to have to suffer because their mother is too sick to work at times. This is my last hope. I really appreciate you just taking the time to read this. May God bless the person reading this.

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Organizer

Cindy Garcia 
Organizer
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