For those of you that dont know me my name is Rachel and our number 3 is Courtney who was born in August 2012.
After a quick labour and easy birth we were shocked to find out she had failed her newborn hearing test but that was the first of many shocks and hurdles our tiny girl would have to face.
You see she has been diagnosed with a severe neurological disorder without unifying diagnosis or in easier terms severe brain damage and no one can tell us why.
But this is not all, she is profoundly deaf in both ears, has cortical vision impairment, failure to thrive, scoliosis, microcephaly, severe global developmental deplay, epilepsy, non mobile or verbal, PEG fed, dual hip dislocation, and struggles with aspiration daily, but dispite all this she smiles and laughs and makes our family complete.
Most of you know im not really good at asking for help but after being turned down once again by NDIS (there are plenty of off the shelf car seat out now) this is my last hope.
Courts is growing... FINALLY, and as we still have her in a standard car seat that suits newborn to 4 years she has reached the age and height limit for safety.
After a lot of research we have found a car seat that will grow with her atleast till shes 15.
Its called a Carrot 3000 ( no resemblance to a carrot at all) but like all special needs equipment its very expensive.
Having this car seat will mean she is comfortable and supported safely while travelling.
PLEASE DONT FEEL PRESSERED TO DONATE!!
The webpage for the car seat is below if you want anymore information...
- Rebeccah Wardle
- Louise Cazzolato
- Kellye Wachmer
- Charlene Copland
- Claire Davies
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