My sweet little boy Connor was born on September 14th, 2017. We were so excited to bring our little boy into the world. He was the most perfect thing I'd ever seen. To say the first year of his life was difficult is an under statement.
The first time I fed him in the hospital I noticed that he would take a few sucks and then be out of breath and he would often fall asleep while feeding. At his week old appointment they told me that he had lost weight from being discharged at the hospital. They told us to feed him 2oz every two hours and come back in 2 days and he should gain 2oz, we did and he did not gain anything. At this time the doctor noticed his very heavy breathing and sent us over to get in ultrasound of his heart to be sure it was ok. At 8 days old we found out that Connor had two very large holes in his heart. The hole between the bottom two chambers was pushing blood into the lungs making him basically drown in fluid as well as making his liver 3 times the size it should be. From that point we started seeing a cardiologist from Morgantown every couple weeks, he was on 3 different medications to try to shrink the holes but it never worked.
In November 2017 Connor was admitted to the hospital in Morgantown for a feed study and was there for several days. Even with the feed study he wasn't gaining the weight, his heart was failing him. We feared that he may not make it much longer without surgery. When we got back home I stressed to his cardiologist how Connor was getting worse. I was trying to force him to eat but he was just physically exhausted. I told her that the surgeons needed to get him scheduled soon or I was going elsewhere.
In January 2018 we finally got the call that his heart surgery was scheduled, January 4th. I was so scared, my poor little baby going in for open heart surgery at 3.5 months old. He did amazing through it! The first time I saw him out of surgery I cried. My little man so puffy full of fluid and tubes hanging from his chest to drain the fluid. But it was instant how well he was breathing now. The following day we got to feed him, they gave him 2oz to see how he would do, normally it would take him 30 minutes to get that down but this time it only took a few minutes. We were all shocked and so happy! He was supposed to stay 7 days post surgery but only had to stay 4 because he was doing so well. He had to have a couple follow ups in Morgantown. His recovery was 6 weeks so the breast bone could heal, time I took off work unpaid.
Throughout his first year there have been many other doctor visits due to ear infections as well as a viral rash that he had to be admitted to the hospital for. But he has really made an incredible recovery and is finally growing the way he should be, yes he's small for his age but for him it's amazing.
Unfortunately for his father and I the medical bills are coming in faster than him and I can make the money to pay for them. We do our best but with every day bills as well it's proving to be very hard. Any amount you can donate is greatly appreciated. We thank you so much for taking the time to read our story about our little miracle boy. <3
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