Unfortunately, Collin was born with a rare heart disease, Hypertrophic Cardiomyopathy.
￼Although, Collin may appear healthy, the symptoms of Cardiomyopathy are extremely variable and can change at anytime. He has been taking medication since birth. Over the past 7 years we have hoped and prayed that things would progress for the better. Unfortunately, things have not. Even with the use of medication, the pressures inside Collins heart are increasing and are causing his heart to work extraordinarily hard. This puts him at high risk for a potentially fatal cardiac event.
We have explored every option in order to avoid surgery. Unfortunately, the time has come to pursue more aggressive treatment. Collin has to have heart surgery to relieve the pressure in his heart. Even after the surgery, his heart will be susceptible to cardiac arrhythmias. As a result, he will need to have an implantable cardiac defibrillator as well. This will protect him should a cardiac arrhythmia occur.
After extensive research, we have found one of the best cardiac surgeons to perform this specialized surgery. We will travel to the Mayo Clinic in Rochester Minnesota where Collin will have his surgery. While we recognize it will be difficult to be so far away from the support of our family and friends, we know Collin is in the best hands.
Although we are experiencing significant stress and anxiety at this time, we are determined to remain positive. We are thankful that we have options available to help Collin. In the recent past, inidividuals like Collin would not have been so fortunate.
We are asking for support for what is not covered by medical insurance and we would like to raise as much money as possible so we can donate to the
Children's Cardiomyopathy Foundation &
The Children's Make a Wish Foundation.
Please pray for Collin and pray for all those children who experience life threatening illnesses.
John & Jessica
- Tristan and Lesley Perich
- Fred Acquavita
- The Brangaccio Family
- Rita Wilkes
- Mike C
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