<div>Soy Deva, una niña cántabra de catorce meses. Con nueve meses fui diagnosticada con <strong>Atrofia Muscular Espinal (AME) tipo 1</strong>, la forma más grave de la enfermedad.
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<div>¿Qué es la AME? Es una enfermedad<strong> rara, neurodegenerativa y grave, </strong>que provoca que las células motoras no reciban la proteína que necesitan para funcionar, lo que genera que todos los músculos del cuerpo se vayan debilitando. Esto incluye el aparato respiratorio y los músculos encargados de la deglución. Hasta 2018 sólo existían tratamientos paliativos. Por fortuna, en el Hospital de Valdecilla recibí un novedoso tratamiento basado en la terapia génica, que frenó el avance de la enfermedad.
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<div>Aunque actualmente trabajo duro en fisioterapia, <strong>la enfermedad no tiene cura</strong> y mis músculos han quedado afectados. Tengo <strong>hipotonía general</strong>, pero especialmente en las piernas y necesito de aparatos de <strong>ortopedia, silla de ruedas y adaptaciones especiales</strong> para poder desarrollar mis capacidades al máximo y ganar autonomía.
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<div><strong>Necesito vuestra ayuda</strong> para continuar accediendo a terapias y tratamientos que me ayuden a progresar, y que en muchas ocasiones la Seguridad Social no cubre, o sólo cubre parcialmente.
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<div>Mi evolución a largo plazo no se sabe cuál será, ya que el tratamiento que me han puesto se aprobó en 2022 y aún no hay suficientes casos clínicos. Por eso lo importante es disfrutar del día a día, con mis pequeños (pero en verdad grandes) avances y <strong>siempre con una sonrisa en la cara.</strong>
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<div>Muchas gracias a todos los que habéis dedicado unos minutos a leer mi historia. Aunque no podáis colaborar económicamente, también me ayudaríais muchísimo <strong>compartiéndola</strong> para que llegue a la mayor cantidad de gente posible.
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<div><strong>Mi familia y yo os lo agradecemos de corazón.</strong>
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Gema Iglesias

Anonymous

Juan Pardiñas Hernández

Jaime García Gavilán

Alfonso Serrano Moreno

Marta San José Roca

DAMASO ROJAS AMANTE

Borja Pérez de Miguel

Haydée Mariñoso

Laura y Luis Lovemaslove

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platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

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US + Non-charity COs Only

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fund country is US and user language is English

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comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

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charityId

UKCharities

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route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

Support Comments Allowlist

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

ai_title_page

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openai

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Native 11.3.0 and above

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GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

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CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

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