This fund is for a precious little girl named Ciara. She is my sisters first born baby girl and she is only 8 years old. She is a big sister to Jaedyn and Joseph who are 7 year old twins and daughter to Jose and McKenzie Husing. A week ago she was a normal 8 year old girl excited about starting her 3rd grade school year at Allie Ward.
Her mom for the past 2 years has been begging for answers for this "bump" that randomly appeared and would not go away. It has caused this entire time horrible pain under her left knee. It has continued to grow and get larger but doctor after doctor, specialist after specialist they continued to misdiagnose her. They consistantly said she had Osgood Schlatter's Disease. My sisters motherly instincts knew that diagnosis was wrong. They have traveled to appointment after appointment looking for someone to listen and help. She finally found a surgeon who not only listened but acted. So on 08/07/18 Ciara underwent surgery to investigate this bump. When the surgeon started the procedure, he was expecting to find a basic small fluid filled cyst if anything at all. Unfortunately that is not what was discovered. A 3 cm mass was removed and sent for pathology to figure out what this mass was. This surgeon has done thousands of surgeries and has not ever seen the type of mass he saw in Ciara's leg which caused major concern. The very next day the suspected diagnosis results were given.
It was suspected to be a rare cancer called synovial sarcoma. As a family we were completely devastated because this was not what was expected. On Tuesday 8/14/18 at 3pm the final and confirmed diagnosis was given of synovial sarcoma and our lives forever changed. This is absolutely nothing that any family, parent or 8 year old little girl should ever have to experience. Ciara is now spending her days coming to term with this absolutely horrible and devistating diagnosis. Beginning at 8am the next morning 08/15/2018 3 hours away from home she had her first surgical oncology appointment to discuss options. Since that appointment she has consulted with multiple oncologists and is currently undergoing additional testing to determine what stage we are facing. Our family spends our days crying, researching and praying for answers to this rare cancer. Not only is this a rare cancer form of cancer but it is extremely rare in someone her age.
Ciaras mother is on an unpaid leave from her employer while she fights for her daughters future. This unpaid leave is a huge financial burden for this family. The last thing a mom and dad should have to worry about is how financially they are going to make these options available to their daughter. They are facing a very hard, long and expensive road which will consist of numerous doctors appointments, tests, and treatments. All of this is occurring a minimum of 3 hours away from their home and possibly further away as this battle continues. Ultimately the goal of this fund to help Ciara and her family make it through this tough time.
Every penny raised will go towards helping Ciara get the best treatment available regardless where it is provided and to keep their family afloat during this hard time.
If you can help at all please do ... no matter how big or small anything is helpful! If you cannot donate please help by sharing this message as well as continuing to pray for our family.