<div>Charlotte experienced her first seizure when she was three years old, originally, she was diagnosed with epilepsy, however, despite being on medication Charlotte continued to have seizures and her parents noticed a regression in her walking, talking and fine motor skills. 
</div>
<div><br />
</div>
<div>Charlotte then proceedeed to have more tests, including a Magnetic Resonance Image (MRI), electroencephalography (EEG) and bloods, and it was only then that she was diagnosed with Battens Disease, an extremely rare neurodegenerative condition where the patient is missing an enzyme and waste material builds up in the brain cells causing the cells to be overwhelmed and become obsolete, a disease so rare, that only 14000 people in the world are diagnosied with it, with only 14 children in Australia.  As yet there is no treatment available that can reverse or make obsolete Battens Disease, and currently Charlotte is undergoing a regime of anticonvusant drugs to try to help slow the impact of the disease, however it is predicted she will only live until 14 years old at most, with a break down of cognotive processes which will include blindness, memory loss, dementia and loss of motor skills. 
</div>
<div><br />
</div>
<div>I have known Sarah since she herself was 13 years old and is like a sister to me, so now as much as she does not want to ask for help, I am setting up a gofundme for her little girl so they can take a holiday as a family together or if Charlotte needs to travel for future treatments.  Sarah had to unfortunately quit work when Charlotte was diagnosed and her partner Mark has his own small business which covers the families needs financially, however financial aid can help provide lasting memories together as a family with the time they have with Charlotte. As with all diseases, there is optimism for a cure through rigourous testing and creation of new medicines and procedures, though progress remains limited at this point, researchers remain hopeful.
</div>
<div><br />
</div>
<div>All funds will be used directly on making memories with Charlotte and ensureing she has the best possible life available to her whilst she battles this rare disease. 
</div>
<div><br />
</div>
<div>If you would like to learn more about Battens Disease, and the battle that Charlotte is facing, you can head to <a href="https://bdsraaustralia.org/learn" target="_blank" rel="noreferrer noopener"><a href="https://bdsraaustralia.org/learn/" target="_blank" class="" rel="nofollow noopener noreferrer">https://bdsraaustralia.org/learn/</a></a> for more information on Battens Disease.
</div>

Anonymous

Deepali Ghadge

ELIOT A CARACO

Jayden Calder

Krystle Buffrey

Nicolene Edwards

Javier Lujan

Adam Dobinson

Hoda El namli

Tina Mendez

Charlotte Jameson

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

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shouldBucketIntoExperiment

partnerId

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npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Charlotte Jameson

Still $4,789 to go. Help us build momentum.