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Charlie's Christmas wish

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Me and Gary  are setting this up for our amazing  11 year old son Charlie Card whos life got turned upside down on 22nd April 2019 Easter monday. After about 6 months of Charlie not feeling 100% and having various symptoms ranging from constantly feeling sick and stiff neck ,to blackouts to his vision intermittently. And numerous trips to the doctors and walk in centres who always returned the same diagnosis of viral infection .
We eventually at his request took him to A&E at the RVI on easter monday vowing not to leave until we had a correct diagnosis.
After a long 7 hour wait and seeing 3 different doctors ,we were admitted to the childrens assesment unit at RVI . Then after another hour of Charlie chatting with another paedeatric registrar, she came to the conclusion that Charlie needed to see a child pyschologist as he was making his symptoms up !!!! Charlie and myself insisted that he wasnt "making things up "She did however manage to get an consultant at the eye department to check his eyes at 10.30 p.m. 
Luckily she spotted that Charlie had pressure on his optical nerves and sent him back to the childrens assesment unit with strict instructions to examine him again .
An hour later came a CAT scan that showed a growth within Charlies head at the base of his brain stem which they fully expected to be a tumour .We were then joined by Dr Gail an oncology consultant and Dr Chris Sharp a Brain surgeon at 2.30a.m in Charlies hospital room. 
They then explained to Charlie and us at the same time that they were going to perform  brain surgery to remove the tumour the next day.
At 7am the next day Charlie was taken for full MRI scan to obtain accurate pictures for the surgery. Then followed 6 hours brain surgery which was a total success removing 99.9% of the tumour from his brain stem and a 1 day stay in Paedeatric intensive care . 
2 days later we were told that the tumour was a Malignant Cancer Meddulloblastoma . Then started a whirlwind of tests and treatments still ongoing .
Unfortunatley the cost of curing cancer comes at cosiderable cost to his previously healthy body .He is a shadow of his former self at the moment ,he has lost most of his hair has lost so much weight and  lost muscle and strength as well.
 He is curently being pump fed via a nasal gastro tube as he has no sense of taste due to radio and chemotherapy .
He has had an apheresis line inserted in his chest to enable bloods /meds and chemotherapy to be administered . He has completed 31 radiotherapy sessions to his brain and spine over a 6 week period 5 days a week . He has already completed 3 rounds of high dose intensive chemotherapy which he has to be admitted for 3/4 weeks at a time ,as well as numerours tests ,xrays, mri scans and even had his stem cells harvested early on which he gets given back after every chemotherapy round . His final 4th round is due to start on the 22nd november which will be the end of his treatment plan . Then it is just regular mri scans and blood tests over the next few years to monitor him .
All of his MRI scans so far have shown no new growth so everything is going as well as it possibly can .
Throughout this whole time we have had amazing support from friends and family . And people have always asked "what can we get Charlie ?" and hes always said he doesnt want anything he just wants to finish his treatment and start enjoying normal day to day life and start his new high school with his friends .
We have been prompted by friends and family that if we set this up he can choose to get whatever he wants with whatever happens . 
Myself Rosie Charlies mam and his dad Gary would like to thank everyone in advance xxxx
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Donations 

  • Anonymous
    • £10 
    • 4 yrs
  • Charlies Nanna And Pops
    • £100 (Offline)
    • 4 yrs
  • David De Yong / Emma
    • £100 (Offline)
    • 4 yrs
  • From Marty Lee Well Done Son Keep It Up
    • £40 (Offline)
    • 4 yrs
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Organizer

Gary Card
Organizer

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