<div>FR : Le 16 mars 2023, nous avons appris que notre fils, Raphaël, était atteint de la maladie de Niemann-Pick de type C, une maladie neurodégénérative rare, aujourd’hui incurable.
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<div>Depuis presque trois ans, nous vivons avec cette épée de Damoclès au-dessus de la tête. Nous avons la chance qu’il aille bien aujourd’hui, et nous espérons de tout cœur que la science trouvera bientôt un traitement.
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<div>C’est pourquoi nous souhaitons soutenir la fondation Niemann-Pick d’Espagne, qui finance activement la recherche et les essais cliniques.
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<div>Un immense merci pour votre soutien, votre générosité et tout l’amour que vous nous témoignez au quotidien.
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<div>100% des fonds seront reversés à la fondation Niemann Pick d’Espagne.
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<div>EN : On 16 March 2023, our son, Raphaël, was diagnosed with Niemann-Pick disease type C, a rare, currently incurable neurodegenerative condition.
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<div>While for the past three years, we have been living with constant uncertainty hanging over us, we are fortunate that today he is doing well.
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<div>We would like to support the Niemann-Pick Foundation of Spain, which actively funds research and clinical trials towards a treatment.
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<div>A huge thank you for your support, your generosity, and all the love you show us every day. Please don’t hesitate to share around.
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<div>100% of collected funds will be to Niemann-Pick Fondation of Spain.
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David Way

Sophie Garcia

Elisabeth Brocquet

Jennifer Scassa

Nicholas Steigrad

Julien Thaens

Laura Asensio

Priscilla Koukoui

Mohamed Ali Ben Abdesselem

Claire Pioger

Clara Vanderstichel

Pierre Padiou

Dalanda Lebrun

Olivier Perri

PIERRE Vuillemin

Sandra Kalcic

Anonymous

Soutenez la recherche sur Niemann-Pick

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