Help Save Eva
Donation protected
Eva is a 18 year old ME/CFS patient residing in Australia.
Additionally to ME/CFS, Eva has been diagnosed with a plethora of secondary chronic health issues including but not limited to CIRS/toxic mold illness (Chronic Inflammatory Response Syndrome) , suspected fibromyalgia, PCOS, extensive digestive issues and a wide variety of others.
Eva’s life was stolen from her before it even began- with her viral onset initiating at age 11. She has now been completely bedridden for 3 years , since 15 years old.
Due to the severity of her condition, Eva has had her education stripped from her.
Currently, she is at an identical level to Whitney Dafoe, a well known very severe ME/CFS patient - who's father , Dr Ron Davis , is a current pioneer in research in the field of ME/CFS in alliance with the Open Medicine Foundation (OMF).
• For reference: a recent CNN publishing outlining:
https://www.google.com/amp/s/amp.cnn.com/cnn/2019/05/12/health/stanford-geneticist-chronic-fatigue-syndrome-trnd/index.html
Eva is effectively paralysed , unable to turn or move and in a state of constant semi comatose.
The severity of Eva’s ME means she is neurologically sensitive to all stimulus, light, sound, and movement. She is unable to speak/ communicate or be communicated with. She is frequently unable to use a phone or text.
This leaves her isolated in a dark room, unable to communicate, to receive comfort from others.
She is unable to swallow/ consume solid foods, and is now showing signs of organ failure and experiencing chronic suffocation.
Information on Eva's condition :
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a multi-systemic neuro-immune disease.
The disease’s Latin name refers to the brain and spinal cord inflammation found in patients.
ME/CFS has the lowest quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.
https://www.meaction.net/2015/08/01/me-patients-have-among-the-poorest-quality-of-life
How you can help
There are , however , a multitude of supports which would greatly assist Eva.
Eva is urgently in need of medical funding to provide access to resources.
While attempting to assist , Eva's family remains in primary insufficient understanding/ ignorance of the nature of her condition.
The supports or medical care covered by this fundraiser include various types of testing, management protocols, medications, in-home care, and anything her family is unwilling or unable to assist with.
This fundraiser has been created on behalf of Eva's support group to increase support in any way possible.
The funds raised will make a significant impact on her quality of life and will be used with care, consent, and communication.
Donations
~ No donation is too small. Many people do not donate due to concern they can not make a difference
Any and all donations are highly appreciated and will be received with unconditional gratitude and love.
In her young life Eva has endured unspeakable suffering. Please help to give her the chance to live a life she has not yet been allowed to live.
Further information and resources :
Eva's story has been detailed in this publishing on ME Australia last year , later republished on numerous platforms including the ME Action website.
https://meaustralia.net/2019/05/10/severe-me-i-had-to-fight-the-people-supposed-to-help-me/
ME Action : " Australian teenager describes forced psychiatric treatment "
https://www.meaction.net/2019/06/28/australian-teenager-with-severe-me-describes-forced-psychiatric-treatment/
Her story aims to raise awareness of the ignorance surrounding the situation of severe patients, and the malpractice and psychiatric intervention surrounding the ME community.
Sharing is deeply helpful and appreciated -
Please consider donating if you can or sharing the fundraiser if you can’t.
Love , Eva and her Support group
The ME movement store
Monica and Eva have designed a merchandise store in addition to the fundraiser, with designs centralising around ME/CFS and a variety of chronic illnesses If you would like to support our campaign and purchase a shirt or other apparel, please visit the store at the following link :
https://www.bonfire.com/store/the-me-movement/
Additionally to ME/CFS, Eva has been diagnosed with a plethora of secondary chronic health issues including but not limited to CIRS/toxic mold illness (Chronic Inflammatory Response Syndrome) , suspected fibromyalgia, PCOS, extensive digestive issues and a wide variety of others.
Eva’s life was stolen from her before it even began- with her viral onset initiating at age 11. She has now been completely bedridden for 3 years , since 15 years old.
Due to the severity of her condition, Eva has had her education stripped from her.
Currently, she is at an identical level to Whitney Dafoe, a well known very severe ME/CFS patient - who's father , Dr Ron Davis , is a current pioneer in research in the field of ME/CFS in alliance with the Open Medicine Foundation (OMF).
• For reference: a recent CNN publishing outlining:
https://www.google.com/amp/s/amp.cnn.com/cnn/2019/05/12/health/stanford-geneticist-chronic-fatigue-syndrome-trnd/index.html
Eva is effectively paralysed , unable to turn or move and in a state of constant semi comatose.
The severity of Eva’s ME means she is neurologically sensitive to all stimulus, light, sound, and movement. She is unable to speak/ communicate or be communicated with. She is frequently unable to use a phone or text.
This leaves her isolated in a dark room, unable to communicate, to receive comfort from others.
She is unable to swallow/ consume solid foods, and is now showing signs of organ failure and experiencing chronic suffocation.
Information on Eva's condition :
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a multi-systemic neuro-immune disease.
The disease’s Latin name refers to the brain and spinal cord inflammation found in patients.
ME/CFS has the lowest quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.
https://www.meaction.net/2015/08/01/me-patients-have-among-the-poorest-quality-of-life
How you can help
There are , however , a multitude of supports which would greatly assist Eva.
Eva is urgently in need of medical funding to provide access to resources.
While attempting to assist , Eva's family remains in primary insufficient understanding/ ignorance of the nature of her condition.
The supports or medical care covered by this fundraiser include various types of testing, management protocols, medications, in-home care, and anything her family is unwilling or unable to assist with.
This fundraiser has been created on behalf of Eva's support group to increase support in any way possible.
The funds raised will make a significant impact on her quality of life and will be used with care, consent, and communication.
Donations
~ No donation is too small. Many people do not donate due to concern they can not make a difference
Any and all donations are highly appreciated and will be received with unconditional gratitude and love.
In her young life Eva has endured unspeakable suffering. Please help to give her the chance to live a life she has not yet been allowed to live.
Further information and resources :
Eva's story has been detailed in this publishing on ME Australia last year , later republished on numerous platforms including the ME Action website.
https://meaustralia.net/2019/05/10/severe-me-i-had-to-fight-the-people-supposed-to-help-me/
ME Action : " Australian teenager describes forced psychiatric treatment "
https://www.meaction.net/2019/06/28/australian-teenager-with-severe-me-describes-forced-psychiatric-treatment/
Her story aims to raise awareness of the ignorance surrounding the situation of severe patients, and the malpractice and psychiatric intervention surrounding the ME community.
Sharing is deeply helpful and appreciated -
Please consider donating if you can or sharing the fundraiser if you can’t.
Love , Eva and her Support group
The ME movement store
Monica and Eva have designed a merchandise store in addition to the fundraiser, with designs centralising around ME/CFS and a variety of chronic illnesses If you would like to support our campaign and purchase a shirt or other apparel, please visit the store at the following link :
https://www.bonfire.com/store/the-me-movement/
Fundraising team: Eva - Support group (2)
Monica Nguyen
Organizer
Raised $140 from 3 donations
Croydon Park NSW
Hang Thu Luu
Beneficiary
Eva Hahn
Team member
Raised $10 from 1 donation
