Cason’s Journey Through Autism

My nephew, Cason, was diagnosed with autism by Vanderbilt Children’s in May 2015 at the age of two years and seven months. Since his diagnosis, Cason has been enrolled in speech, occupational therapy, and applied behavioral analysis (ABA) therapy spanning the past three and a half years. While these treatment modalities have offered improvements, we have seen the most notable transformation in Cason since he received his first round of stem cell infusions from the Stem Cell Institute of Panama in June 2018. Cason is now more engaged with his siblings/peers and has a genuine interest in the world around him. Though Cason has made significant strides in his language skills, he is still not conversational, however, we are hopeful that further stem cell treatments will accomplish this.

Unfortunately, this treatment option is not currently available in the United States, though trials are being conducted at major universities, such as Duke. Since this treatment is not approved, it is also not covered by insurance carriers, leaving families solely responsible for the financial burden.

For the past three years, my sister and Cason have commuted to Nashville from Lafayette four to five days a week (140 miles round trip) in order for Cason to attend vital therapy sessions. Despite the amazing generosity of our family and friends, a diagnosis of autism is financially draining beyond most individual’s understanding, leaving it nearly impossible to fathom being able to afford an additional stem cell treatment. This journey with autism would be financially straining enough, however, my sister and Dustin also have two other amazing boys to care for, as well.

If we meet our fundraising goal listed above, this will allow Cason to travel to Panama to receive an additional week of stem cell infusions. We have struggled with how to proceed with this obstacle, because we do not wish for people to feel as if we are begging for money. However, we also can not let this opportunity for an increased quality of life pass by Cason. This sweet soul deserves the chance to live a full, independent life, and we truly believe that these stem cell treatments will offer him that opportunity.

Any donation, no matter the size, is greatly appreciated. Regardless of donation, please keep us in your thoughts and prayers.