About 27 years ago my mum got Guillain-Barre Syndrome. GBS is a disorder in which the body's immune system attacks part of the peripheral nervous system. These symptoms can increase in intensity until certain muscles cannot be used at all and, when severe, the person is almost totally paralyzed. In these cases the disorder is life threatening - potentially interfering with breathing and at times with blood pressure or heart rate and is considered a medical emergency.
Fortunately/unfortunately for my mum, she recovered completely from GBS that time, but a few years later, the same thing happened and she was then diagnosed with CIDP. http://www.polyneuroexchange.com/cidp/about?aboutid=2
Chronic Inflammatory Demyelinating Polyneuropathy which is the chronic form of GBS, recurring once or twice or in my mums case, 7 times in the last 20 years. Each time she is hospitalised and intravenous cortisone and immunoglobulin is administrated. She is totally reliable on another person in these times and each tiny movement is like running a marathon. It takes months and months for her to be back to full health and mobility.
There is a new treatment option that they would like to try which is called Plasma Exchange which could potentially by life changing for my mum. It is extremely expensive and the medical fund in Namibia will not pay for this.
Everyone who knows my mum, knows what a beautiful person she is. Because she's been unwell for most of her adult life, it has not stopped her from being joyful, God and fun-loving, instead it's made her the opposite. She never complains when she gets unwell, keeps her great sense of humour and stays positive.
My family and I would be so grateful for any donations to help pay for this treatment and all the hospital costs involved.
Our mum, wife and ouma means the world to us!
Thank you in advance to each and every one!
- Janelle Matchett
- Molly Rule
- Elize greyling
- Wilma schoeman
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