Cullen has had 3 surgeries since July which include, a drain in his head that lead to inserting a shunt in his brain to his stomach and now a piece of his skull and brain removed to make room for swelling and for biopsies to try and figure out what's going on. He has also had biopsies from his leg and bone marrow taken from his back. He has round the clock care with a huge team of doctors working very hard to figure out why this is happening and if they can find a cure. Kristi (Cullen's mom) hasn't been able to work because this is so serious that she won't leave his bedside and the bills have become too much to handle. Currently his bills have surpassed 1 million dollars...
He has a long recovery ahead of him and may need another surgery to cover his brain once the swelling goes Down. If that's the case, he will need a special helmet to protect his brain while we search for answers. This is very rare what cullen has, there are only 8 other known cases that are similar, they still don't know what exactly it is that he has. This sweet boy is fighting so hard and is so strong. Anything donated does not go unnoticed, and is so greatly appreciated.
- Kaci Tokumoto
- Jeannine Ryan
- Taran Leu
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more