Camila's CMD Journey
Donation protected
The story of Camila.....
Camila is a sweet 3 year old girl that was born with Congenital Muscular Dystrophy (CMD, Merosin Deficient, LAMA2). When she was born, we had no idea she had CMD. I was so excited to finally have a daughter (after having two sweet, loving boys)! Around 6 weeks after her birth, I noticed her feet were turning inward. As a nursing student, I knew there were some things we needed to address with her pediatrician. She was initially treated for Club Foot (serial casting and surgery.) After the treatment, she wasn't developing as she should. Her little body was very "floppy" and had severe hypotonia. We saw a neurologist that gave us life changing news that turned our world upside down. He thought she had Spinal Muscular Atrophy One - the leading genetic killer in babies. After a month of waiting for blood tests to come back, we were informed that she did not have SMA1, but she did have CMD. After living those 30 days of thinking my baby was going pass away, my entire life changed. I like to think I lived a good life before that, but I became the woman, wife and mother that I was destined to be. Material things went out the window. I was so thankful that my baby was going to survive and be with us and no matter what obstacles she faced, we would be there for everything with her.
Fast forwarding through these 3 years... Camila has had many doctors appointments and surgeries. She has had numerous hospital stays due to respiratory illnesses. But she is happy. Camila has 100% cognition intact. I couldn't be more thankful for that. She is a normal, three year old diva. She drives a pink power wheel chair better than most adults could.
Camila is our angel from God.
Our family consists of my husband Ivan, our three sons Carter, Evan and Dylan and princess Camila. Ivan and I work as bartenders and I am in nursing school full time. I graduate in May, 2018 with my Associate Degree in Nursing and I graduate in May, 2019 with my Bachelors of Science in Nursing. I am dual enrolled in two colleges through a program called RIBN (Reginally Increasing Bachelorette Nurses). I decided to get a higher education to be more knowledgable about Camila's disease process and to give back to a community that has given us so much hope. I want to show my children that education is achievable at any time in your life. I can't wait to walk across the stage in less than a year!
We decided to make a Go Fund Me account to fund an accessible vehicle for Camila and to make our house more accessible for her as she is getting older and her needs are ever changing. Thankfully, we do not have any outstanding medical bills for Camila's care.
Also, if you cannot donate, prayers are much appreciated. We are so thankful for all the emotional support we have recieved over the past 3 years.
Thank you for reading our story. We are forever changed because of Camila. We love more than we have ever loved before. We pray harder than we have ever prayed. We just live day by day. We try to remain positive about the future and are thankful for each day spent together as a family.
Camila is a sweet 3 year old girl that was born with Congenital Muscular Dystrophy (CMD, Merosin Deficient, LAMA2). When she was born, we had no idea she had CMD. I was so excited to finally have a daughter (after having two sweet, loving boys)! Around 6 weeks after her birth, I noticed her feet were turning inward. As a nursing student, I knew there were some things we needed to address with her pediatrician. She was initially treated for Club Foot (serial casting and surgery.) After the treatment, she wasn't developing as she should. Her little body was very "floppy" and had severe hypotonia. We saw a neurologist that gave us life changing news that turned our world upside down. He thought she had Spinal Muscular Atrophy One - the leading genetic killer in babies. After a month of waiting for blood tests to come back, we were informed that she did not have SMA1, but she did have CMD. After living those 30 days of thinking my baby was going pass away, my entire life changed. I like to think I lived a good life before that, but I became the woman, wife and mother that I was destined to be. Material things went out the window. I was so thankful that my baby was going to survive and be with us and no matter what obstacles she faced, we would be there for everything with her.
Fast forwarding through these 3 years... Camila has had many doctors appointments and surgeries. She has had numerous hospital stays due to respiratory illnesses. But she is happy. Camila has 100% cognition intact. I couldn't be more thankful for that. She is a normal, three year old diva. She drives a pink power wheel chair better than most adults could.
Camila is our angel from God.
Our family consists of my husband Ivan, our three sons Carter, Evan and Dylan and princess Camila. Ivan and I work as bartenders and I am in nursing school full time. I graduate in May, 2018 with my Associate Degree in Nursing and I graduate in May, 2019 with my Bachelors of Science in Nursing. I am dual enrolled in two colleges through a program called RIBN (Reginally Increasing Bachelorette Nurses). I decided to get a higher education to be more knowledgable about Camila's disease process and to give back to a community that has given us so much hope. I want to show my children that education is achievable at any time in your life. I can't wait to walk across the stage in less than a year!
We decided to make a Go Fund Me account to fund an accessible vehicle for Camila and to make our house more accessible for her as she is getting older and her needs are ever changing. Thankfully, we do not have any outstanding medical bills for Camila's care.
Also, if you cannot donate, prayers are much appreciated. We are so thankful for all the emotional support we have recieved over the past 3 years.
Thank you for reading our story. We are forever changed because of Camila. We love more than we have ever loved before. We pray harder than we have ever prayed. We just live day by day. We try to remain positive about the future and are thankful for each day spent together as a family.
Organizer
Terrah Elizabeth Borsh
Organizer
Leicester, NC
