Jason has a history of severe psoriasis and related issues since age 7, but despite these issues he has shown remarkable strength and resilience in dealing with the many physical, emotional, and social challenges that go along with a chronic medical condition.
Recently, Jason was given a new challenge. Jason became very ill, very suddenly, and was brought to the emergency department on the evening of July 6, 2017. Preliminary testing, including CT scan and labs, indicated a serious problem with his pancreas, and he was transferred to the pediatric unit at the local hospital at 4:00 AM on July 7, 2017. Later that day, he was transferred by air ambulance to Children's Hospital of Colorado, and was admitted to the PICU (pediatric intensive care unit), where he remains at the time of this writing. The official diagnosis is necrotizing pancreatitis. The majority of his pancreas has been destroyed, and he has severe pancreatic insufficiency resulting in requiring insulin to manage his blood sugar. Blood sugars continue to fluctuate significantly, and the medical team continues to work on getting this under control. He has been taken off the insulin pump, and is now on injectable lantus and sliding scale. He is also experiencing significant difficulty breathing due to water having collected around his lungs, making it difficult for him to breathe and difficult for his body to get the oxygen he needs. There are a variety of ongoing treatments addressing this currently, He has been in significant pain most of the time, and his medical team is working hard to control and manage his pain as well as possible. He has been unable to eat and has a feeding tube in place, but currently his feeding is suspended while the team works to flush his digestive system.
Jason will hopefully be able to leave the intensive care unit soon, but will likely remain in the hospital for quite some time, and will have a long and challenging road to recovery even after his discharge.
Despite his current conditions, he continues to work hard at treatment and recovery. He continues to try and be positive and think of others, even in his most difficult hours.
Thank you for reading Jason's story. Any help toward covering his medical bills, travel and lodging, lost wages, and other costs associated with his treatment and recovery will be received with the deepest and most heartfelt gratitude, and every effort will be made to pay it forward.
- Sharon Lewin
- Joy Springer
- Kelly McDonald Smith
- Nicole Sudhoff
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