Hydrocephalus is a life-threatening brain condition, which is characterized by an excess of cerebral fluid in the brain. The main treatment is brain surgery, consisting of a shunt placement. Shunts were developed 50 years ago, and have one of the highest failure rates of any surgical treatments. Our neurosurgeon told us that he has seen patients that have endured 100 brain surgeries from birth-18 years, to replace their shunt. The other main treatment (which is one of the surgeries Garrett had) is an ETV, where the pathway between the ventricles of the brain is widened to allow the fluid to pass through. Not everyone can benefit from this surgery, and the pathway can close at any time, which would require additional ETV surgeries or a shunt placement.
Since hydrocephalus is relatively rare, it does not receive a lot of funds for research for a cure and better treatment.
Help us us reach our goal to improve the lives of all those with hydrocephalus!