Maddie Prieur is organizing this fundraiser on behalf of Katie Geerken.
Baby Cameron Geerken, four months old, started having seizures Friday October 27th. His parents, David and Katie Geerken, rushed him to the emergency room at Children’s Hospital. After 12 long hours and countless tests, scans and ultrasounds, he was diagnosed with Tuberous Sclerosis. TS is a rare genetic or spontaneous gene mutation that disables either one or two genes that prevent benign tumors from growing in your major organs. Cameron has one moderate size tumor on his left frontal lobe, of his brain, which caused the two seizures he had last Friday. He also has 6 or 7 small tubers (tumors) throughout his brain. He has also been suffering from about 30 to 40 infantile spasms a day, which are basically smaller seizures. Along with the brain tumors, he has another tumor on the right ventricle of his heart and a cyst on his right kidney. He is on a anti-seizure medication for the major seizures, which thank God has been working so far. He also started another medication today to, God willing, stop the infantile spasms. As of right now, we don’t know the prognosis for Cameron. It’s going to be a lifelong, day by day effort. No one child, with this complex disease, is alike. There is an extremely wide spectrum, from mild to very severe outcomes. We obviously are praying that Cameron is on the milder form of the spectrum; but we won’t know that for a long time. Our first priority is to get the seizures and infantile spasms under control. We are writing this first and foremost for continued prayers from everyone. Second, the Geerkens’ are bringing Cameron and their girls, Avery and Addyson, to a Tuberous Sclerosis specialty clinic in Birmingham, Alabama this coming Tuesday November 7th. The entire family will be tested in case this has been a genetic mutation. We are so thankful for all the thoughts and prayers! Please, please continue to pray for baby Cam to gain some relief from these seizures and that the girls don’t have any trace of this horrible disease. Thank you so much!