Baby Savannah

I want to thank everybody for the prayers. I know most of you are not sure what is going on, but still continue to pray for us and we really appreciate it. So let me update all of you. Our little girl, Savannah, was born on 11/15/19. She has been very healthy and almost a week later, we were notified that her newborn screening had an abnormal finding and we had to go back to the clinic. They repeated her newborn screening and Monday we were called that her screening was still abnormal and to go straight to Shannon in San Angelo to be admitted. Savannah was put in isolation and diagnosed with (SCIDS) Severe Combined Immunodeficiency. She basically has little to no immune system and without treatment she may not be here with us long. They decided to do a direct flight with her to Children’s Medical Center in Dallas. She is in the NICU and in isolation until further notice. SCIDS is hereditary so her team of doctors are doing everything possible to try to figure out why his happened and what her treatment will be. This is a very rare thing and there is only 40-100 babies born with this every year in the United States. The T-cells which help us fight diseases is produced in the thymus gland and if there is a problem with her thymus not working, then she will need a thymus transplant and we will have to go to Duke in North Carolina for that. If her cells are just not maturing then we will have to do a bone marrow transplant and more than likely the transplant will have to come from me and that procedure will be done at Children’s Medical Center in Dallas. She has a great team of doctors working on this mystery to make our baby girl better. We are praying and trying to stay strong and positive. This is going to be a long journey for us. Please keep us in your thoughts and prayers thank you.