Help Baby William Bradford

Our sweet baby boy was diagnosed with a very rare life-threatening genetic disorder. The first year of his life is critical and requires our care nearly every hour of the day and night, regular hospital visits, and ER visits for any illness. We are the types that rarely ever ask for help, but this will be taxing beyond what we can handle and we could really use some help. We appreciate anyone who can contribute to our baby William.

The condition is called Very-long-chain acyl-CoA dehydrogenase deficiency (VLCAD) and renders the body unable to break down certain fats.

"If VLCAD is not treated, babies usually die young. It is important to screen for and treat VLCAD. Untreated VLCAD can cause breathing problems, seizures, coma, or brain damage if not treated." Affected individuals are also at risk for serious complications such as liver abnormalities and life-threatening heart problems.

Thank so much for your support.

https://ghr.nlm.nih.gov/condition/very-long-chain-acyl-coa-dehydrogenase-deficiency#resources

http://www.babysfirsttest.org/newborn-screening/conditions/very-long-chain-acyl-coa-dehydrogenase-deficiency