<div><br />
</div>
<div>Brontë was born 15th November 2024.
</div>
<div>At around two weeks old her dad noticed what looked like a bruise on the side of her face. We took her to the doctors where they said it was a birthmark.
</div>
<div>We came away and carried on with life as normal. But something was telling us Brontë wasn’t right.
</div>
<div>And as the months went on she would scream for hours on end, be constantly unsettled, wouldn’t nap, wouldn’t sleep at night, would refuse her feeds and go hours without having any milk.
</div>
<div>As a mother my instincts kicked in and I knew something wasn’t right.
</div>
<div>A couple of months went by and the mark on her face was growing. Rapidly. It was protruding out, it was dark purple and hot to touch.
</div>
<div>We took her back to the hospital and after many appointments, tests and an MRI scan they confirmed she has a “Kaposiform hemangioendothelioma” (KHE). Which is an extremely rare vascular tumour affecting around 0.179 per 100,000 children. And less than 1% in every 1.4 million people. 
</div>
<div><br />
</div>
<div>At 6 months old we got admitted to the children’s hospital where more blood tests were done. The results were petrifying. Her platelet and fibrinogen levels were critically low meaning that at any moment she could have bled out internally or externally as her blood didn’t have the correct levels to clot.
</div>
<div>Brontë needed emergency transfusions which included a platelet transfusion, two cryoprecipitate transfusions and a full blood transfusion.
</div>
<div>Soon after she was put on two different types of medications. One of those being an immunosuppressant medication making her immune system very low. There were signs of the treatment working and we felt like we were on the right path to recovery. After nearly 6 weeks in hospital we got discharged and made it home with her medication plan.
</div>
<div><br />
</div>
<div>We managed 10 days at home. Then we noticed red flags. She was unsettled again and she was refusing her feeds and the tumour looked to be getting bigger again. We got admitted back in to hospital to be told that her platelets are still dropping. The medication isn’t working as it should.
</div>
<div><br />
</div>
<div>And just yesterday we were informed that her tumour (KHE) has now progressed further turning it into something that’s called a “Kasabach-Merritt phenomenon”(KMP). This is a complication of her tumour which can be life threatening.
</div>
<div><br />
</div>
<div>They’re now working out if her medication needs changing and this could include her starting chemotherapy treatment.
</div>
<div>We were also informed that this tumour will never actually go, it’s just managed by medication. And they can’t tell us how long she will be on medication for, it could potentially be for life.
</div>
<div><br />
</div>
<div>This has hit our family like a tonne of bricks and shattered our hearts and turned our world upside down.
</div>
<div>But with your help we’re hoping that we can raise some money so that as parents our financial worries aren’t our main worry.
</div>
<div>My maternity pay ends in a matter of weeks and I was due to be back at work in September. This is not going to be possible as Brontë needs my full care and attention and can’t start nursery until she is stable. But that being said the mortgage and household bills still need paying and as most of us know, this is hard off one income.
</div>
<div><br />
</div>
<div>Any extra funds that are raised will be spent on some family time with Brontë when she’s stable for all the months that she has missed out on. Throughout her whole life she has known nothing but excruciating pain and discomfort and although it’s only 8 short months that she’s been here, for her, it’s been her whole life. She’s known nothing else.
</div>
<div><br />
</div>
<div>We would really appreciate your support.
</div>
<div>Love the Brooks family.
</div>
<div><em>(Chris, Natalie, Sophia &amp; Brontë) </em>
</div>

Romaana Bibi

Anonymous

David Harwood

jay green

Mary Feehan

Joanne Ormerod

Megan Stalker

Lesley Carney

Graham Calderbank

Daniel Ward

Lorena Eccles

GAIL DEMMY

Brontës vascular tumour

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

Native 11.4.0 and higher

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Brontës vascular tumour

Still £1,397 to go. Help us build momentum.