Help Me Get to the Mayo Clinic!
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My Life Depends on Your Help! Please Help Get Me to the Mayo Clinic and the Medical Team I Deserve.
I have had the privilage of being accepted into the Mayo Clinic. This is not something you choose. It is something they choose you for. It is for the most complicated diseases that are difficult to treat. I will have a full medical team working on my case. This is the best hope I have for getting back to a semi-normal life. My family, who already pays very expensive insurance premiums, have over-extended ourselves taking care of my health care needs already. I do not know if I will be at Mayo for 2 days or 2 months to get stable. I may have to make multiple trips. I will have to stay at the on-site Marriot hospital and I will likely have to travel regularly or simply live there. I have been very ill for 3-years. In spite, I have started a successful business and recreated my life to fit what I can manage with this disease. I am unemployable because my health is so sporadic but because I do not have a disease with a 'true diagnosis' I cannot get disability or even qualify for a drug trial. I am deteriorating much more quickly than before and I have become more fragile and more weak in spite of therapy. I am frightened and I know that this will eventually be a life-ending illness. I have medications that have slowed its progression; however, the side effects are almost as bad as the disease and I have developed osteoporosis, cataracts, pre-diabetes, and several other serious diseases as a result. I live in pain but I move on. I am not the kind of person to roll over and die. I get knocked down sometimes but I always pull myself back up by the bootstraps and keep moving. Things could be much worse but I still ache to have a fraction of my old life back. In spite of this disease, I am successful in my business (with the help of an amazing team) and I am working hard to not just earn a check one day but to leave a legacy to my son. Please consider helping me so that I may get the treatment I need. I still have hope. I am not giving up. I am doing the best I can do to roll with the plan that God has given me. Your help is appreciated. Even if you cannot give, please share. Someone else may be in my situation and be just as frightened and frustrated. There is hope. My hope is at the Mayo Clinic. I feel truly honored to be able to get the care that they can offer me.
I have had the privilage of being accepted into the Mayo Clinic. This is not something you choose. It is something they choose you for. It is for the most complicated diseases that are difficult to treat. I will have a full medical team working on my case. This is the best hope I have for getting back to a semi-normal life. My family, who already pays very expensive insurance premiums, have over-extended ourselves taking care of my health care needs already. I do not know if I will be at Mayo for 2 days or 2 months to get stable. I may have to make multiple trips. I will have to stay at the on-site Marriot hospital and I will likely have to travel regularly or simply live there. I have been very ill for 3-years. In spite, I have started a successful business and recreated my life to fit what I can manage with this disease. I am unemployable because my health is so sporadic but because I do not have a disease with a 'true diagnosis' I cannot get disability or even qualify for a drug trial. I am deteriorating much more quickly than before and I have become more fragile and more weak in spite of therapy. I am frightened and I know that this will eventually be a life-ending illness. I have medications that have slowed its progression; however, the side effects are almost as bad as the disease and I have developed osteoporosis, cataracts, pre-diabetes, and several other serious diseases as a result. I live in pain but I move on. I am not the kind of person to roll over and die. I get knocked down sometimes but I always pull myself back up by the bootstraps and keep moving. Things could be much worse but I still ache to have a fraction of my old life back. In spite of this disease, I am successful in my business (with the help of an amazing team) and I am working hard to not just earn a check one day but to leave a legacy to my son. Please consider helping me so that I may get the treatment I need. I still have hope. I am not giving up. I am doing the best I can do to roll with the plan that God has given me. Your help is appreciated. Even if you cannot give, please share. Someone else may be in my situation and be just as frightened and frustrated. There is hope. My hope is at the Mayo Clinic. I feel truly honored to be able to get the care that they can offer me.
Organizer
Brenda Gardner Newby
Organizer
Seagoville, TX
