Brendan was unable to breathe on his own and required an oscillator, intubation and full sedation/paralytic. Along the way he developed a very large blood clot in his leg, pneumonia, a lung infection, febrile fevers, a full body rash, bleeding in his eyes and allergies to some medications. His liver and kidneys began to fail due to oxygen deprivation.
Over the last few weeks he has slowly improved to where he now can breathe on his own with nasal oxygen. His liver and kidneys continue to improve. The lung infection is under control and the pneumonia is getting better. The other conditions remain. He currently is choking on all forms of oral nutrition.
Brendan has been diagnosed with Cornelia de Lange syndrome and Autism for many years. These conditions prevent him from fully understanding the seriousness of his condition. Mom has had to take a leave from her job to stay with him at the hospital which will cause her paychecks to diminish shortly. Dad as taken unpaid leave from his job to be with Brendan during this critical time and care for his younger brother.
Even though the family has health insurance and Brendan has Medicaid, many of the bills will not be covered. Some of the doctors don't accept the insurances, the helicopter (apx $34,000) is not fully covered, and there will be residual PT and possibly Speech which are only covered for minimal visits. Brendan needs to follow up with an eye specialist who does not accept their insurance as well as a pulmonologist. His road to recovery will be long but the family is so grateful that the doctors now say "when" instead of "if" Brendan recovers.
All funds will go to assist my sister Janet Eckerson with uncovered medical expenses, medications and anything her son Brendan needs to help with his recovery.
- Brian DeRose
- Carol Pister
- Dianne Caruso
- Lynn Distefano
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more