It's been a whole month since Scarletts brain surgery and shes doing better than any of us could have hoped for! Her head was swollen for 3 weeks and its finally gone down and the pain she was feeling has finally decreased. Scarlett has already completed 1 week of therapy in Toronto and is starting her 2nd week today. She stays there overnight with her parents at her side and comes home on weekends. She has made plenty of friends and is doing so well.
October 13 2018
Scarlett is now home from Sicks Kids.. She is doing much better than we thought. She is still swollen and in a lot of pain. . but she is being treated with the right medication. She will be home for a week or 2 and than will be headed into a live in rehabilitation centre in Toronto for 4-6 weeks.. could be longer, could be shorter.. it depends on the progress she makes! This is where she will get help with her speech and walking. We're so happy the hard part is over and now its time for this precious girl to shine!!
October 8th 2018
Scarlett Summers Thanksgiving Miracle!
Scarlett is on her slow road to recovery. She is eating better today, she’s been on a few walks around sickkids hospital with the help of a wheelchair, she’s still In pain and depends on pain medication every few hours. She’s still off and on sleeping 16 hours a day and her swelling is still there.
She’ll be assessed by a team that runs the rehab department tomorrow.
Hope everyone had lots of family time, lots of turkey and a lovely thanksgiving!!
Sending lots of love back from Scarlett and family!
October 6th 2018
Scarlett is still sleeping lots still. Her little body only wants to stay up minutes had a time. Her face is swollen and will get worse before it gets better. She was sitting up today, definitely seeing some progress!! She's doing well for what her little body went threw and we are so proud of her!!
October 5th 2018
Scarlett is officially out of the ICU... but she is still being monitored closely, they feared she would lose the ability to use her speech but she has been saying a few words. She’s Still sedated and sleeping lots. She is recovering better than we could imagine !! Thanks everyone .. we will update daily for everyone!!
October 4th 2018
Scarletts 8 hour surgery was a success! The surgeons said it was one of the best surgeries they have done! Now it’s healing time! We will keep everyone updated each day! Thanks again everyone!
October 4th 2018
Today is Scarletts surgery. The surgery will begin just before lunch! I will post an update as soon as I get one! Please pray for her and keep her in your thoughts! Thanks for all the donations so far. Her family is extremely grateful and can't believe the love and support from other people!
Here we have beautiful 3 year old Scarlett Summer, an amazing, fun loving child who’s charm will leave you in awe the moment you meet her. She’s a funny loving girl who always leaves a smile on everyone around her. She’s been diagnosed with a severe case of focal seizure epilepsy and requires an open brain surgery. Over the past 3 years Scarlett Summer has been in and out of hospitals, clinics and appointments regarding her focal epilepsy. In the beginning while her parents held her as a little baby girl with all those loving good feelings you get when you’re first holding your baby. Only to find and look down at her with all this love to see that she wasn’t moving. Was she sleeping with her eyes open? Why has her whole body gone limp? Oh my! A few minutes later baby Scarlett would snap out of this spell she was in. Over the next few years, with the seizures growing longer, stronger and more often. Her parents would explain to family, friends and doctors what was happening only to be told this is normal in children, they do strange things, your new parents. The world around Scarlett was unfamiliar with focal seizures. No one would believe what Scarlett was going through. Mom persisted on arranging appointments, having to leave work to be there full time for her baby girl, to be able to watch over her, monitor what she was seeing in her daughter. Dad stepped up by continuing to work full time while having to rearrange work around medical appointments, having to drop everything then leave to these emergency hospital visits some some lasting for weeks at a time to make sure his girls were okay. Over the last few years, Scarlett’s strong parents had to oversee their daughter go through multiple focal seizures each day starting out with one or two and growing to ten to over twenty seizures per day. Desperate and lost for words, after having to go to several emergency visits to multiple local hospitals for over three years, they found a great medical team to take on Scarlett’s case. Through a mixture of various medications, not having the proper medical benefits in place, they still provided them for their daughter to aim to control these seizures. With the seizures now controlled, comes great side effects from the medications. Scarlett is now three years old and is a little delayed in her learning and development . The medical professionals believe she is over a year behind and others think even longer. The medications and seizures can make Scarlett very tired having her sleep longer throughout her busy day. Recently Scarlett and her family have been called into several big hospital meetings with over 30 people working on her case. The team has approved Scarlett for an open brain surgery with a chance of seizure free success. This surgery consists of multiple weekly visits to the hospital, several mri’s, eeg’s, including medical data wires being inserted into her brain. Scarlett will be hospitalized for up to two to three months along with removing a portion of her brain. Followed by home care retraining and development. We’re all praying for Scarlett and her family at this time and pray for Scarlett to have a successful surgery without any complications. If any were to to arise Scarlett’s family and friends would be devastated after all this loving little girl has been through. Her family and team remain confident that this is the greatest option for Scarlett to have the best quality of life and an opportunity to be seizure free. Scarlett and her parents thank all their family, friends, employers, medical team along with everyone for believing and supporting her along the way. I myself as a parent couldn’t imagine all the things this family has gone and is currently going through. Let’s give Scarlett and her family the financial opportunity for the time they need to be in the hospital with Scarlett and the time they need to help Scarlett get through all this and prepare for her future. Your donation today along with a few kind words, will be a blessing to this family. Once again thank you for believing in Scarlett Summer and sharing her story. Health updates and medical progress throughout this journey will be shared. We believe in you Scarlett Summer. We want you to look back at this experience as a positive one, not only for yourself, but to raise awareness that you and your parents are not alone. We as your family and community are here to support you along your journey. You’re a wonderful girl and we know you’ll use this medical opportunity to set a good path in your future. We’re happy to help you along the way.
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- Nathan Hynes
- TTyler Amaral
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