Brady & Kaylen-Quality of Life Fund

Kaylen Kochans and Brady Bell were diagnosed with Limb Girdle Muscular Dystrophy (LGMD) when they were just toddlers.  Never heard of it?  – neither had we.  LGMD first causes great difficulty walking, going both up and down stairs and raising from a chair.  Next comes the inability to bend over or squat down.  Lifting certain objects, as well as difficulty extending your arms out or above your head becomes impossible. 

The disease inevitably gets worse over time, and commonly leads to dependence on a wheelchair.  The picture was taken when they were teenagers before the onset of the visible symptoms of LGMD.   They are now in their twenties and are both confined to hospital beds and dependent on others for any quality of life.

As a family, we have decided we must take action now to improve their quality of life and fight against the terrible impact this disease is having -- So we have purchased a handicap accessible van.  This will mean that they can leave the house for family gatherings and much needed therapy to prevent the disease from taking all of their joy. 

We need your help financially. While insurance covers many necessities it does not provide for the accessible van or additional care they need.  The money we raise will first go to pay for the van and then into a Quality of Life fund to get all of the necessary help and support they need like modifications to their home, medical equipment, and helping with all the normal bills.