The disease inevitably gets worse over time, and commonly leads to dependence on a wheelchair. The picture was taken when they were teenagers before the onset of the visible symptoms of LGMD. They are now in their twenties and are both confined to hospital beds and dependent on others for any quality of life.
As a family, we have decided we must take action now to improve their quality of life and fight against the terrible impact this disease is having -- So we have purchased a handicap accessible van. This will mean that they can leave the house for family gatherings and much needed therapy to prevent the disease from taking all of their joy.
We need your help financially. While insurance covers many necessities it does not provide for the accessible van or additional care they need. The money we raise will first go to pay for the van and then into a Quality of Life fund to get all of the necessary help and support they need like modifications to their home, medical equipment, and helping with all the normal bills.
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- Eric Wilder
- Marie Benoit-Wilcox
- Joanna Neiderhiser
- Anita Albaghli
- Linda and Richard Montavon
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