parents need help

$96,138 of $20,000 goal

Raised by 2,548 people in 4 months
Our  son ja'bari  was born January 1,2019 @11:40am at Methodist hospital . My whole time being pregnant everything was going good then an ultrasound showed that he wasn't gaining weight so they decided to induced me at 37 weeks then when I went the morning to get induced his heart rate was dropping so they end up doing a emergency c section ,once they got him out the noticed he was born without his skin his eyes are fussed shut which will require surgery to open them, he was born at 3 pounds. He is requiring a breathing machine that is breathing for him , he has past away twice and the Drs have brought him back,the skin disorder he has is so very rare that no Dr has ever seen it before and is very hard to treat with lil to no info at all . It has been very hard for us as a family to sede with this it's hard to go to work just worrying about ja'bari health and hopoho he dieantd have another event of stop breathing , it's taken a complete tole on all of us. Each and every day is a blessing that he is still fighting to live on this Earth , and donation big or small will be such a blessing to us thank you and keep following his fight
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baby boy dancing
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Started today on lowering his pain meds again (every Thursday and Monday) today they did midazolam he was at .30 now he's at .27
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baby boy is doing so well thank y'all so very much for the prayers and keeping faith
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I'm so frustrated now we came to the point of his eyes they fused closed again after 2 surgery's to open them up now the eye Drs said they will not mess with his eyes anymore since they keep scarring close. Idk what to do now I want my baby to be able to see this isn't fair
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$96,138 of $20,000 goal

Raised by 2,548 people in 4 months
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JB
$20
Jon'a Balkum
14 hours ago
RB
$10
Robert Blumstein
21 hours ago
DG
$50
Dana Gorfinkel
1 day ago
DG
$20
Donna Guardino
1 day ago
HA
$100
Heather Aldridge
1 day ago
RB
$20
Ron Bartman
2 days ago
AW
$50
Andre Woodfork
2 days ago
EL
$25
Ella Labor
2 days ago
$25
Anonymous
2 days ago
AH
$50
Angela H
2 days ago
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