Helping us stay close to Natalie

As many of you know my daughter Natalie has been in the NICU for 3 weeks now. She was diagnosed with hydrops and pleural effusion, they have her no chance of survival at delivery. She beat the odds and made a drastic change in just the first week. She was born weighing 6 pounds 11 ounces and dropped down to 3 pounds 15 ounces. She was accumulating more fluid from being fed breastmilk and was then diagnosed with congenital chylothorax, which is a tear In her thoratic duct or it didn't develop fully. She is now temporarily off feeds and on a medication called oceotride. Due to the pressure of the fluid and not being able to cough up any junk because of the tubes down her throat she now has a partially collapsed lung which the breathing tube is directly pushing pressure into her lung to expand it open. Tyler and I stay at the Ronald McDonald house 15 miles away to sleep. We spend almost 14 hours at the hospital next to her bed watching the monitors and trying to figure out which alarm is going off and why. We sit here and read her bedtime stories before we leave and talk to her about the future. The past 3 weeks have seemed like a lifetime and all of the doctors and nurses can't believe how far she's come in such a little amount of time. The reason we made a go fund me account is because neither of us have a job down here because we spend every minute with our baby girl. Tyler is trying to get a temporary job with his friend to help the financial burden we are stuck in. Driving back and fourth every day and spending money on food gets expensive and we wouldn't even of been able to make it this far if it weren't for our family. So in the meantime we are just asking for a few donations, nothing big because we hate even having to ask. You all have been such supporters already and all of the prayers have truely made a difference in our lives and we don't want to ask for to much or seem like unsuitable parents because we aren't working temporarily. Our baby girl is doing much better but still has bad days and I can't seem to find the strength to bring myself to leave her for 6 hours a day. So every little penny helps. Keep the prayers coming and remember that all of your prayers have really helped my babygirl pull through. Thank you all for the support in our time and need and I wish right now I could give you all something back but I can't now but when Natalie gets out of here and we have an income coming in we will pay it forward. This whole experience has been life changing and changed my whole outlook on life. You all will meet truely know how thankful the three of us are for each and every one of you. Thank you ❤️
  • cheryl eberhart 
    • $100 
    • 84 mos
  • Toby and Jenna Elkins 
    • $150 
    • 84 mos
  • Dale Strothman 
    • $500 
    • 84 mos
  • The Wagner's 
    • $40 
    • 84 mos
  • Patricia Edwards 
    • $30 
    • 84 mos
See all

Organizer

Cally Camacho 
Organizer
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