<div>Bowin has recently been diagnosed with a complication to his bone marrow transplant he received in 2023, Autoimmune Hemolytic Anemia. The family is still learning about what this will look like but statistically the prognosis is not great. Stay tuned for updates as they navigate this new diagnosis.
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<div>This is Bowin, he is currently battling Adrenoleukodystrophy, or ALD. Recently it has been discovered that his ALD is progressing very quickly and now is the time for action. Stem cell replacement and Gene Therapy are both options to consider. This very rare disease will need to be treated by a specialist in Minnesota for upwards of 7 months. Cost of living will be expensive not to mention the medical bills which we hope Canada will help with. Bowin and his family need our help! Please donate whatever you can spare so this family can stay together and have one less stressor during these difficult times.
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<div>My name is Diandra and I have known Bowins mom, Chantel since we were 6 years old. I introduced her to her husband Jason years later and have watched their family grow from a young couple to a bustling family. Chantel and Jason have faced many hardships in their journey but none harder than the diagnosis of their son Bowin. This family has had to fight for a diagnosis and push doctors to look past the obvious as this disease is so rare. Chantel continues to run her own business and be an inspiration to so many with her positive outlook on life and determination.
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<div>Adrenoleukodystrophy (ALD) is a rare genetic condition that causes the buildup of very long chain fatty acids (VLCFAs) in the brain. When VLCFAs accumulate, they destroy the protective myelin sheath around nerve cells, responsible for brain function.
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<div>Adrenoleukodystrophy has no cure. However, stem cell transplantation may stop the progression of ALD if done when neurological symptoms first appear. Doctors will focus on relieving symptoms and slowing the diseases progression
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<div>According to the U.S. National Library of Medicine, the prevalence of ALD is 1 in 20,000 to 50,000 individuals worldwide.
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<div>In 2020 a Saskatchewan family received the same diagnosis and the canadian medical system was not equipped to treat ALD in the timely manner that is required for this disease that does not stop and wait for treatment. They ended up going to the specialists in the US to treat their son at a cost of close to $1 million. Luckily the treatment worked for this young boy but his parents are left to fight the Canadian government to help pay the bill... A request which has been denied.
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<div>My hope is that we can raise enough so that Bowins family doesn't need to sell off their entire life to support their son. Let's help get Bowin Healthy so they can come home and resume the life they have worked so hard for.
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<div>Check out the link below to learn more about ALD
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<div><a href="https://adrenoleukodystrophy.info/clinical-diagnosis/facts-on-ald" target="_blank" rel="noreferrer noopener"><a href="https://adrenoleukodystrophy.info/clinical-diagnosis/facts-on-ald" target="_blank" class="" rel="nofollow noopener noreferrer">https://adrenoleukodystrophy.info/clinical-diagnosis/facts-on-ald</a></a>
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Anonymous

Roya Saffari

Alexandra Arsene

Jill Romanchuk

Wendy Herrick

Darren Kish

Larisa Bothma

Doug Harder

Zoe Urand

Deborah Krysciak

Victoria Casella

Bailey Hynes

Kari Hornady

Bowins ALD fund

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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fund country is US and user language is English

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Android v12.11.0 and above

Platform is Android

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Payment method type group to be vaulted on success

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EUR Donation Upsell

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

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Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

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UC Tipping v20250115 International

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Android at or above 12.2.0

Profile photo entry point audience

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Activity Tracking v1 Beta Testing

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Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

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AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

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Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

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Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

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v11.5.0 and above

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appVersion is at or above 12.8.0

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CAD Donation Upsell Audience

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iOS App Version

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PYMK has donors

iOS v12.3.0 and above

Bowins ALD fund

Still $21,232 to go. Help us build momentum.