Hello everyone my name is Anto im trying to raise money for bobby treatment in Boston only place known to have treatment and information on this as the doctor who discovered this condition is lead doctor in the hospital

The Long Search for the Truth

For a long time, we thought we knew what we were facing. Like many families of children with rare genetic conditions, we were told bobby had Autism. We threw ourselves into therapies and tried to adapt to that world, but in our hearts, we knew something more was happening.

A Breakthrough Across the Ocean

After months of uncertainty and specialized blood work, his samples were sent all the way to Germany for advanced genetic testing. That was the moment our world shifted. The results came back not with a typical diagnosis, but with something we had never heard of: Chopra-Amiel-Gordon Syndrome (CAGS).

What is CAGS?

CAGS is an ultra-rare genetic disorder—so rare that it was only first described in 2021. It affects everything from brain development and speech to his immune system and kidney health. While it explains why our journey has been so different, it also means that most doctors have never even seen a case of it.

Why Boston?

Because this condition is so new and rare, there is only one hospital in the world with a dedicated clinic for it: Boston Children’s Hospital. Under the care of Dr. Maya Chopra, the leading expert who helped discover this syndrome, bobby will finally have access to the specialists he needs—neurologists, immunologists, and geneticists who actually understand his DNA