Judah's Medical Treatments
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This page is dedicated to our son Judah. We appreciate you taking the time to read this and help.
Judah has been a very sick little guy since I was pregnant. He has always been a fussy eater, which we thought he would grow out of. Unfortunately, he began to lose weight at alarming rates. He fell off the growth chart for his age. Judah has never been able to eat solid foods or baby food. He would vomit or aspirate if food was offered or put in his mouth. After one year of seeing every doctor and doing every test we finally found a tech who gave us her opinion which happened to send us in the right direction. At the age of 21 months Judah still cannot eat solid food. He still drinks formula and is on liquid diet. He of course is very thin and weak. Judah has never developed the muscles in his mouth to eat or speak. He has a few different conditions he has low tone in his mouth which is a neurological issue that doesn't tell his mouth to chew or move when its needs to. Because of this he has developed texture and sensory aversions. Judah's condition is not recognized by the medical field and is not covered by insurance. Judah currently receives therapy 3x per week to help him and myself work with the lack of development. We have currently used all of our resources to help our son. There are very few facilities in the US to help kiddos like Judah. The closest one to NM is in Denver. It is a private hospital that treats Judah's exact condition. The name of the facility is SPD Star Center. It has been a true blessing to find a place that understands what we are going through with our baby. We have completed an intake and initial paperwork for Judah. He is an ideal patient for their program. The cost for the program is very costly and does not accept our insurance. The cost is $17,000. I currently do not have a deadline. We are working as quickly as possible to raise money. I'm hoping to bring awareness to NM hospitals and open facilities to help the hundreds of children in NM. Judah's condition is rare but affects enough children to have more facilities and resources close to home. I truly appreciate you taking the time to read this. If I can answer any other questions please let me. God is good and I know through him all things are possible. We will get Judah the treatment he needs. We are so thankful that you are willing to help in addition to your support we could also use all the prayers we can get.
www.facebook.com/blessjudah
Judah has been a very sick little guy since I was pregnant. He has always been a fussy eater, which we thought he would grow out of. Unfortunately, he began to lose weight at alarming rates. He fell off the growth chart for his age. Judah has never been able to eat solid foods or baby food. He would vomit or aspirate if food was offered or put in his mouth. After one year of seeing every doctor and doing every test we finally found a tech who gave us her opinion which happened to send us in the right direction. At the age of 21 months Judah still cannot eat solid food. He still drinks formula and is on liquid diet. He of course is very thin and weak. Judah has never developed the muscles in his mouth to eat or speak. He has a few different conditions he has low tone in his mouth which is a neurological issue that doesn't tell his mouth to chew or move when its needs to. Because of this he has developed texture and sensory aversions. Judah's condition is not recognized by the medical field and is not covered by insurance. Judah currently receives therapy 3x per week to help him and myself work with the lack of development. We have currently used all of our resources to help our son. There are very few facilities in the US to help kiddos like Judah. The closest one to NM is in Denver. It is a private hospital that treats Judah's exact condition. The name of the facility is SPD Star Center. It has been a true blessing to find a place that understands what we are going through with our baby. We have completed an intake and initial paperwork for Judah. He is an ideal patient for their program. The cost for the program is very costly and does not accept our insurance. The cost is $17,000. I currently do not have a deadline. We are working as quickly as possible to raise money. I'm hoping to bring awareness to NM hospitals and open facilities to help the hundreds of children in NM. Judah's condition is rare but affects enough children to have more facilities and resources close to home. I truly appreciate you taking the time to read this. If I can answer any other questions please let me. God is good and I know through him all things are possible. We will get Judah the treatment he needs. We are so thankful that you are willing to help in addition to your support we could also use all the prayers we can get.
www.facebook.com/blessjudah
Organizer
Paulla Marrujo
Organizer
Albuquerque, NM
