"Baby Nash" #Nashtheincredible

Meet Nash Wyatt, our little Heart Warrior! #Nashtheincredible was born on September 24th. His story goes back to when at 22 weeks pregnant, we found out our baby boy was diagnosed with hypoplastic left heart syndrome, a congenital heart defect where only half of his heart developed. Many doctors tried to convince us to terminate Nash, but we chose to  give him every chance at life even though we were told the chances of him surviving were very slim. Nash was stabilized after birth and had his first open heart surgery at only 4 days old. He had an emergency 2nd surgery just two days later and then about a month later living at the children's hospital, Nash finally was able to come home to his 3 older siblings and parents. We were able to return to a somewhat normal life besides many cardiology appointments and check ups. In December, we noticed Nash's breathing got a little heavy, and we took him in. He was admitted to childrens hospital for showing signs of heart failure, and went in for a routine cath procedure the next day. We were supposed to go home about two days after, but less than 24 hours later , Nash coded right in front of us and we watched as they tried to save our baby. With their quick thinking they managed to get him on ECMO,  a life support machine that saved his life. The following few days he remained on the machine until they decided to take him off and move him to a breathing tube.  He spent his first Christmas at 3 months old in the hospital and it was extremely hard on our family. He's having trouble getting off the breathing tube and had to be re intubated and as of now no plan of whats the next step. Were praying his heart will be strong enough and able to get off the breathing tube soon and he will be able to come home soon before his next surgery. Any help anybody can give is beyond greatly appreciated as we are a one income family of 6. Taking the time off of work to be by Nash's side through his journey is a MUST because this little fighter needs family, prayers and positivity! He will forever be a single ventricle child but getting him through the stages of multiple surgeries to live a normal life will always be his challenge. Thank you all for all your love and support! #Nashtheincredible #hypoplasticleftheartsyndrome