Ben is an 11 year old boy with a rare genetic mutation called STXBP1 which causes severe development and physical delay along with epilepsy. Ben needs 24 hour care and now he is bigger we cannot lift him anymore so he needs to get an overhead hoist for his bedroom and playroom to make life more easy for him and us.
We are not entitled to help from the HSE so we are now in a position where we need to raise the money ourselves, so we are going to run a few events and if anyone would like to help make Ben's daily routine more accessible we would be truly grateful.
Ben, Dianna, Adriaan, Alissa and Josh.
- Tina (gym pals ) Kane
- Anthony Barr
- Gerry & family
- Caitriona Goslin & friends
- Mark Donohue
Dianna Ross Pretorius