Jaxon is a happy, loving, gentle and curious young boy who lives in Terrace, BC. But he was born with a rare condition called Trisomy 13, otherwise known as Patau Syndrome. Trisomy 13 affects children in many different ways. Jaxon has irretractable seizure disorder, kidney defects and heart defects. He is also blind and deaf.
Jaxon also has developmental delays and low muscle tone throughout his entire body, including his mouth and jaw. This makes eating and swallowing food difficult so Jaxon uses a feeding tube to get the nutrition he needs.
To date Jaxon’s parents, my dear friends Mike and Lisa da Costa , have covered all costs associated with Jaxon’s condition. This must be considerable considering the many trips they have to take to the Children’s Hospital in Vancouver every year for operations, examinations, care, follow-up appointments, etc.
I am asking our community and friends to help Jaxon and his family in any way possible. Please give as little or as much as you can to help them Jaxon’s family buy him a bed that will keep him safe. Any amount will help and any amount will be greatly appreciated.
Thank you so much and please feel free to contact me at [email redacted] if you have any questions or would like to make a donation outside of this page.
Sincerely Shawna Hartman
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