<div>Hi I’m Mia, mum of Harper and This is Harper Sol. My love, my whole reason.
</div>
<div><br />
</div>
<div>we are based in ramsgate, Kent.
</div>
<div><br />
</div>
<div>for the last year Clayton and I have been fighting for answers for Harper, to be seen and listened to and for somebody to tell me what’s going on and why doesn’t she do things like other children. 
</div>
<div><br />
</div>
<div>Sunday 23rd June, our whole lives were turned upside down. Harper was diagnosed with SMA type 2, spinal muscular atrophy. A rare genetic neurological muscular disease that falls under the Motor Neurone Disease bracket. This disease is extremely progressive. Typically children and babies with SMA lose rapid motor control and end up with progressive scoliosis, intercostal muscle weakness and restrictive lung disease. 
</div>
<div><br />
</div>
<div>In 2016 a “miracle drug” called Spinraza was brought to the world after clinical trials and extensive testing. And it hasn’t been on the NHS for very long. It is the most expensive treatment in the UK today. I’ve never felt more lucky to have the NHS than I do right now. The drug, administered by a lumber puncture puts the SMN1 protein back in harpers body to slow the progression of the disease down and help regain motor control. With extensive physio, Harper could regain some of the skills she has lost and live a long happy life.
</div>
<div><br />
</div>
<div>Harper started treatment this week. She will have 3 more doses in the next 60 days, and then every 4 months for the rest of her life. Trust me, nobody prepares you for a near 2 year old having a lumber puncture. I am so proud and in awe of my daughter and how she has handled everything like a champ. She really is my inspiration. Harper will still require wheelchair use, aids and aggressive therapy but we will not give up on getting her to reach her full potential.
</div>
<div><br />
</div>
<div>We would like to raise money together for the additional needs Harper will require through this journey. Like intense physio, equipment, mobility aids in the home and travel expenses for our hospital trips and stays. Due to Harpers diagnosis, I am unable to work and am dedicating every minute around the clock to our little girl. 
</div>
<div><br />
</div>
<div>Love you my little bug. 
</div>

Christine Squirrell

Debbie Addley

Kathryn Headley

Angela Jordan

Susan Munson

Richard Proctor

Kathy Barry

Lucia Deere

suzanne everix

Karen Little

MARION ATTWELL

Shelley Worsfold

Jane De Rose

Gemma Smith

Sarah Godwin

Jamie Gabb

Anonymous

Benjamin Newdick

Kristina Newdick

Nicola Murray

Beautiful Harpers journey with SMA type 2

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

be_supporter_comments_enabled_supported_funds

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Enter your donation forBeautiful Harpers journey with SMA type 2