- I
My name is Renee, and I am fighting rare aggressive brain cancer Glioblastoma.
September 2024 I had vision changes that looked like trees reflecting on a dark pool. They came and went for a few days, and then one night I couldn’t sleep because when I closed my eyes it was still there….
My wife took my to emergency where I was given migraine medication and sent home. A few days later she took me to the GP who gave me migraine meds and sent me home. A few days later she took me back to the hospital, where I was finally scanned and a mandarin sized tumour was found, in my occipital lobe.
It felt like the floor dropped out from beneath me and I cried so hard. I knew it was coming, ever since I was a baby, these crippling headaches and hormone problems.
I spent a week in isolation, knowing I was going to die soon. My family visited every day, but I was alone and terrified. The day my isolation ended, I was rushed for a MRI, and then wheeled in to surgery for a five hour craniotomy less than 24hrs later.
i woke up hallucinating, and it hasn’t stopped since. It’s been six months and i have done more than fifty doses of Temodar, and 30 Radiotherapy sessions.
My wife has stopped work to care for me full time. I am mostly bed ridden due to vision, balance, hearing and fatigue barriers.
When this terrible disease struck, our whole life as we knew it ended. The survival rates beyond five years are very low, and neurological disease progression is extremely cruel. We are living day to day, looking for joy and daring to plan ahead.
I don’t have much time left. Be a part of my life! Every moment I have is so precious, and I want to be able to share them with you.
Buy me a life changing support, or buy me a cup of tea.
I will think of you, and we will be close again.
“Do not go gently into that good night”






