Tri for Jellybean Joolz

On August 3, 2014 I'm doing my first Olympic distance triathlon in Riverhead, NY....
Swim 1.5 km
Bike 40 km
Run 10 km

I'm raising money for the Inflammatory Breast Cancer (IBC) Network benefiting women with IBC, like my cousin Joolz - in the main picture above with her two boys - in both the USA and UK. Please read our story below...

I was 8 when I joined my first band. My older sister Fiona was in it and my big cousin Joolz made up the trio and carried the clunky 80's cassette player. We were the Jellybean Dancers (because we wore jelly shoes) and we headlined a couple of serious family garden gigs - to 5-person audiences....

I could never dance in time with the other two (see photo below - Joolz is on the right...) Maybe that's why we didn't hit stardom beyond the garden party circuit. 

Almost thirty years passed. The Jellybean Dancers grew up, got jobs, got married. Jellybean Joolz had two boys. Then she got sick. She was 41 when she was diagnosed with inflammatory breast cancer. Our worlds stopped spinning.

IBC is a rare, aggressive and often unheard of form of breast cancer. After 16 months of treatment, Joolz was told the cancer had spread to her liver, lungs and bones and was incurable. She began taking a new targeted chemo drug and scans show the cancer is being stopped in its tracks for now. She remains on this drug indefinitely.

Joolz continues to be an amazing mum to her boys - now nine and 11. But there are times things get too hard. She finds strength and hope in the IBC Network. Established in the US and now with a group of its own in the UK where Joolz lives, the IBC Network funds research into this  highly fatal and misdiagnosed form of breast cancer.

Her experience helped plant a powerful seed within her - to educate others about IBC and to help fund research. Although IBC can't be prevented, early detection and diagnosis can help improve the outcome for sufferers

Cancer will not define Joolz and of the precious things it might rob her of, her amazing history is not one of them. She is above all a mother, wife, daughter, sister, friend, teacher, traveller, giggler. And a dancer. A Jellybean dancer.

Please help make her future and others with IBC more hopeful.

Donations from both US and UK-based friends will fund research benefiting women in both countries.
Hope always and thank you, Jellybean Sal. X

For more information on the IBC Network Foundation visit www.theibcnetwork.org


Joolz (front), during her wedding weekend, with her bridesmaids - me (middle) and Jellybean Fi.

Donations

  • Katy Ross 
    • $30 
    • 71 mos
  • Laura Clark 
    • $30 
    • 71 mos
  • Bernadette Smith 
    • $50 
    • 71 mos
  • Inez Corr 
    • $30 
    • 71 mos
  • Julie Strelley Jones 
    • $100 
    • 71 mos
See all

Organizer

Sally Wilson 
Organizer
IBC NETWORK FOUNDATION 
Registered nonprofit
Donations are 100% tax deductible.
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