Bailey wants to be a normal kid

Bailey Ogan was a normal 10 year old boy until last summer when he was taken to the hospital for a fever, where he was diagnosed with a heart murmur and pulmonary hypertension resulting in a 24 day stay in the PICU (Pediatric Intensive Care Unit).  After nearly a year of unsuccessful treatments, and attempting multiple blood pressure medications, last month Bailey had his 4th catheterization.  The prognosis is that he is not a candidate for surgery to repair the heart murmur and will be on oxygen 24/7 for the rest of his life.

Baily is currently on a large home oxygen concentrator with a long hose he calls his “leash” that runs through the house, and has several sizes of heavy tanks that he takes with him to school, and on trips away from home that only last a few hours each.  A small light weight portable oxygen concentrator such as the Inogen G4 that is only 3 lbs, would give Bailey freedom to be a kid, and not worry about dragging his “leash”, or lugging around large tanks, and carts, and how long he can be away from the fill station. 

Bailey will never play competitive sports in school, and doctors expect his energy levels to gradually decrease over his life until it gets to the point that passing out from exertion becomes almost normal.  At that point he would become a candidate for a heart and lung transplant, which typically has a 5 year life expectancy after the surgery.