Little Zack, aka Zaika, was dual diagnosed at 8 months, with Gaucher's disease and LCH. Doctors discovered the LCH to be a tumor in his lung and was treated with a year of chemo. As the chemo treatments are over and the tumor is now only being monitored, the non curable Gaucher's is a life long battle. Gaucher's disease is an inherited disorder that affects many of the body's organs and tissues; although treatable, Gaucher's is not curable. The medicine for this rare condition, given every two weeks via infusion, costs over $1,500 a vial. Due to the rarity of Zaika's type of gaucher's, he requires 2 vials every week, $12,000 per month. Luckily the insurance covers most of the infusion expenses as well as most of the would-be crippling costs associated with someone who is chronically ill. But even though we are blessed with amazing coverage, it still doesn't include the co-pays and deductibles associated with other medical expenses, such as doctor visits, medications, medical supplies, procedures and tests, and any unexpected expenses, such as ambulance rides, additional home care, etc.
Please help Zaika and his family pay for the growing list of things he needs to help him stay well.