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The Gray family was excited for the arrival of a precious baby girl, but little did they know devastating news was awaiting them. During the 16 week ultrasound while performing the nuchal test, the doctors noticed a concerning amount of thickness behind the baby’s neck which was mostly common with chromosome abnormalties.
After receiving this information, Mom and Dad were referred to a genetics counselor where they were told that it would be helpful if they gave blood samples to have their chromosomes tested for Down syndrome, as well as two other common traits dealing with “thickness of the neck”. Although Mom hated needles, she was willing to get pricked yet again. Baffled yet happy, the test yielded negative results and they were then referred to a maternal fetal medicine doctor AKA "High Risk OB/'GYN" to discuss the risks of having an invasive procedure called an amniocentesis .
Nervous of the risks, Mom and Dad decided to go forward with the procedure due to their angst in knowing exactly what that finding of the 16 week ultrasound meant for the future of their baby girl.
After the results of the procedure they were informed that their baby girl’s heart was not properly developed in the womb, and she would most likely perish in utero. Given the fact that they were still within the 20 week guideline they were given the option to terminate or proceed with the pregnancy.
Princess’s parents, Gena "Lisa" & Joseph decided to proceed forward giving her a chance; while at the same time risking Gena’s health due to the medication she had to take daily to keep the babies heart in stable condition. This meant weekly stints to "CHOP" Children's Hospital of Philadelphia, for the next 4 months to receive echocardiograms, sonograms, baby heart monitoring and observing Mom’s overall health. Gena made this grueling 4 hour round trip three times a week.
Everything was going as well as could be, and on June 14, 2017, Princess Josephine Alexandra Gray was welcomed into the world by her proud & happy parents. She weighed 7 lbs 6oz, but unfortunately approximately 2 lbs was extra fluid known as hydrops. With the extra fluid surrounding her lungs, Princess was unable to breath on her own and was immediately placed on a ventilator via oral breathing tube. In addition, her heart operated as if she was running on a treadmill. This required continuous doses of several medications ultimately playing a part in her demise.
Princess was diagnosed with the rarest of the rare form of Congenital Heart Disease (1 in 5,000) with consortium of the following heart diseases and diagnoses:
1) Critical Aortic Stenosis with dilated left ventricle
2) Severe Mitral regurgitation
3) Hypoplastic Aortic Arch
4) Intact Atrial Septum
(7) Pulmonary Edema
Regrettably, Baby Princess was never able to go home but she went to Heaven July 16th 2017. She spent her entire life in the CICU (cardiac intensive care unit) undergoing countless procedures to try and save her life. WOULD YOU LIKE TO KNOW WHAT IT’S LIKE?
Put yourself in Gena & Joseph's shoes. Princess could have been your child. Unfortunately, she won't ever splash in the pool, beg for vanilla ice cream, or sing her favorite songs.
Funds for this Go Fund Me account will be used to pay for Princess Gray's 33 day stay at Children’s Hospital of Philadelphia and her funeral costs. We also ask for your continued prayers for Gena & Joseph, they are greatly appreciated.
HOW YOU CAN HELP TODAY
1) Please GIVE what you can. No donation is too small.
2) SHARE on social media
3) EMAIL this page - gofundme.com/pgray - to your family + friends. LET'S GO VIRAL!
- Onisha Nichols
- Chris and Krystal moses
- elijah blue
- Sky Taylor
Organizer and beneficiary
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