BabyLucas MedicalFlight

My son Lucas is one years old with Charge Syndrome, a genetic disorder. He was born with many complications including a heart defect with 5 anomalies, only one kidney at stage three failure, hearing loss, vision loss, and unable to eat by mouth. He has other minor issues aswell. . We recently had an expedited Open Heart Surgery in hopes to reverse the spells he has been having, stops breathing, turns blue and needs breath compressions. Here at our home hospital (we have been here 18 days postop) they have run out of ideas and have agreed to send him to the Air way and Charge syndrome headquarters in the marvelous Cincinnati Children’s Hospital in Ohio. We will be careflighted there ANY day. The worry is the bills and that we have to fly ourselves back home. The expense of living in the hospital for a month already is hard enough.. we are flying to another state in which we will have to fend for ourselves in the end. We are extremely excited to visit Cincinnati Children’s, as we believe the answers lye there for sweet Lucas!! We are VERY optimistic about his care and his future. We pray that we get there and back as safely and stress free as possible! Any donations will go towards our flight back home, travel expenses, and of course ANY new treatment or help in the diagnosis of these anomalies Lucas has brought upon us.
Thank you for reading, considering, and thinking of our sweet Baby Lucas. Even if you are unable to donate, we hold each and every one of you close to our hearts for sharing and the support we all receive. Love you all and thank you SO much.
- Lucas Mother