Baby Regann

This is baby Regann she was born January 22 2018. She has an extremely rare disease called Krabbe. This disease can cause developmental delay, seizures, limb stiffness and can even be life threatening. She is currently in St. Louis undergoing many tests, bone marrow transplants, and treatments. She is currently one of the highest priority cases at the hospital as there are very few cases in the world like it. They have doctors all over the world working on this case. But we are asking for your help. She will have to be there for 6 months to a year and the bills are piling up very quickly. Espeecially with travel expenses gping back and forth. Anything would be very appreciated or even just a share to get the word out about this awful disease. Thank you in advance.