What is SMA?
SMA stands from Spinal Muscular Atrophy. SMA is a genetic condition that robs people of the ability to move and breathe. ...How does someone get SMA?
SMA is inherited. 1 in 50 people are unknowingly carriers of the condition and when 2 people are carriers have a baby, there is a 25% chance their child will be affected with SMA. Recent statistics show 1 in 11,000 babies are born with SMA.
It is the #1 genetic killer of babies under 2 years old (for SMA Type 1).
Can SMA be cured?
As of today SMA CANNOT be cured, but as of just a couple years ago it can be treated and the progression can be slowed with a newly FDA approved drug called Spinraza. As great as this sounds, many insurance carriers still deny treatment with Spinraza.