What is SMA?
SMA stands from Spinal Muscular Atrophy. SMA is a genetic condition that robs people of the ability to move and breathe. ...How does someone get SMA?
SMA is inherited. 1 in 50 people are unknowingly carriers of the condition and when 2 people are carriers have a baby, there is a 25% chance their child will be affected with SMA. Recent statistics show 1 in 11,000 babies are born with SMA.
It is the #1 genetic killer of babies under 2 years old (for SMA Type 1).
Can SMA be cured?
As of today SMA CANNOT be cured, but as of just a couple years ago it can be treated and the progression can be slowed with a newly FDA approved drug called Spinraza. As great as this sounds, many insurance carriers still deny treatment with Spinraza.
DonationsSee top donations
- Kalee Jackson
- Eva Pogue
- Roxanne Hickman
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more