Baby Fisher CDH Help Fund

After a routine ultrasound in December 2017, Derek and Alison learned that their baby was diagnosed with a rare, life-threatening medical condition known as Congenital Diaphragmatic Hernia (CDH). This occurs when a hole in the diaphragm (the muscle under the lungs that is responsible for breathing) does not develop correctly and allows the organs from the abdomen to move into the chest cavity during the first Trimester. CDH affects about one in every 2,500 babies per year. This condition prevents proper lung development, function, and complications of other major organs. This condition prevents the normal development and growth of the lungs which means: when a child's lungs do not fully develop he or she will not be able to breath on his or her own after they're born. The national survival rate for this condition is only 48%, but we hope with enough support for Mom, Dad, and Baby Fisher they can receive the best possible care available. This condition requires immediate postnatal surgery along with an extended stay in the Neonatal Intensive Care Unit. Baby Fisher and Mom are currently being treated by doctors at Avita Healtcare in Mansfield, Ohio, The Ohio State Wexner Medical Center, and Nationwide Children's Hospital in Columbus, Ohio. After their most recent visit to Nationwide Children's Hospital and extensive testing through MRI's, echo-cardiograms, and ultrasounds doctors at Nationwide Children's Hospital have determined that Baby Fisher's CDH is very severe as his liver, stomach, and intestines have all ascended into the right side of his chest cavity and his lung volume is currently at  25%. Alison and Derek were told Baby Fisher has approximately a 25% survival rate at this time. Therefore, Alison and Derek have made the decision the best course of action is traveling to St. Petersburg, Florida to meet with Dr. David Kayes whom is a CDH specialist at John's Hopkins All Children's Hospital for a second opinion and possible labor and delivery in addition to post-natal care. 
Upon medical direction, Alison and Derek will make the tough decision on where Baby Fisher will be delivered in early May.  Regardless of where Baby Fisher is delivered, he will immediately be intubated and undergo surgery along with further treatment. Baby Fisher's stay in the NICU will range between a few weeks to several months. This will require Mom to remain by Baby Fisher's side as he recovers. During this time, Dad will travel between home in Mansfield, Ohio and the hospital to be with them as often as possible as he will be caring for their other two children. 
The support we rally here will be used toward travel and medical expenses as well as loss of income for their family. 
In addition to this, there is a spaghetti dinner benefit for the family on March 24, 2018 at the Backroom, 880 Laver Rd., Mansfield, Ohio 44905.

Thank you from the bottom of our hearts for all of your support. Please pray with us as we embark on this journey.

Donations ()

  • Adam Molyet 
    • $100 
    • 25 mos
  • Amanda Loyer  
    • $20 
    • 25 mos
  • Anne Strine 
    • $250 
    • 25 mos
  • Plank M&K 
    • $50 
    • 25 mos
  • Michael Bruening 
    • $25 
    • 25 mos
See all

Organizer

Beth Graves-Brasseur 
Organizer
Mansfield, OH
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