After trying a variety of drugs over the past few years without success, I have finally found one that works, Actemra. It has been like a miracle to me. After a very rough winter where I rarely was able to leave my recliner, let alone my house, I am finally able to get up and start doing some things again. I have even been able to start volunteering once a month and was considering a part-time job.
Here's the "but":
Actemra infusions are very expensive ($17,493/month.) We do have insurance and I was told when I began that I was pre-qualified by my insurance and that my cost for the year would be approximately $2600 ($1,000 deductible, and 20% of 8,000.) Well, not so much. My insurance leaves me with approximately $1000 unpaid for every infusion.
We have already exhausted our FSA and I was denied financial aid through IU. We have depleted our savings and I've even used my daughter's camp money to pay down the bill. I am attempting to get a grant from Genetech to cover my portion but I am not yet approved. Regardless, it won't cover my outstanding bill now even if I am approved. I was notified by IU Health that in order to continue my infusions, I must make the minimum payment of $857.48 by July 11, and must continue to pay $1280 monthly until my balance is paid off. This is an impossibility. I already have around $11,000 in previous medical bills that I'm paying on every month and a monthly prescription costs of $211.
I don't want to go back to being miserable! So, as much as I don't want to ask for help, I decided it was necessary. I realize that many of you are in the same boat, or at least similar boats, and you are probably grumbling to yourself right now. If that is the case, I apologize for offending you and I certainly won't hold it against anyone who doesn't participate. However, if you have a single, or a five sitting around and you'd like to help, I would be so eternally grateful.
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