Our fighting Aurora-Kelly needs a P Pod chair

Aurora Kelly has PKS : Pallister killian syndrome, which is a very rare syndrome that 1- 25million baby’s are born with . She also has Bilateral Polymicrogyria a abnorma corpus callousum of the brain. Aurora is pump fed due to an unsafe swallow. She has PDA ligation of the heart with hypo-plastic left heart syndrome and Pulmonary hypotension of the lungs and also has epilepsy. This little fighter has come very close to losing herlife and has spent many times in hospital fighting and is still undergoing tests and monitoring. Auroras condition is life limiting, specialists have been unable to give a time line for her survival as this could be days or many years with her determination to keep fighting. Aurora spends 99% of her time led in her cot we have brought her bean bag which she loves but she managed to wiggle down it and is now our growing it . These chairs are great for maintaining her position and will help build up muscle tone in her neck to be able to hold her own head. The smallest size will last her a while as she grows and keeps fighting against all odds. Unfortunately these chairs are not supplied and we would love to be able to raise the money to buy one for aurora our little fighting princess.