Kayla's Medical Journey!!!!
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Kayla is a strong 18-year-old girl who was healthy for most of her life. When she was first admitted to the hospital in December of 2012, her bladder had begun shutting down and doctors were unsure why.
After over a year of tests and scans, Kayla was diagnosed with Ehlers-Danlos Syndrome (EDS); a condition affecting the production of collagen which is important for tissue formation and structure within the body. Months passed and not much was working to curb her constant pain.
With only a few months into the New Year, Kayla was re-admitted to the hospital and now diagnosed with a new condition called Superior Mesenteric Artery (SMA) Syndrome; a rare digestive disorder only affecting about 500 people.
While these medical conditions have catastrophically interrupted her life and have resulted in dozens of extended in-patient hospitalizations, Kayla enforces strict rules that “only positive and happy people” are welcome to visit her when she is unwell. Her positivity and enthusiasm about living her life despite her illness, is absolutely contagious.
Kayls has an opportunity to go to the Mayo Clinic in the United States and our insurance company will only cover $3000.. The initial deposit is $7000 and the whole cost can be up to $20,000 plus , although we will try to apply for a loan and get this covered someway, we are still dealing with the costs of her being ill over the last 2 years. We are reaching out for help. Kayla has had to fight with Dr's to be listened too and to get them to take action.. Now she is in the adult world and everyone has stopped looking and just wants to make sure she has nutrition and as long as she can pee with a catheter and have a bowel movement with help she is okay.. She has 2 tubes in her stomach one for feeding and one for venting. She is now being fed through a PICC line in her arm with TPN. That is not good enough for an 18year old strong woman who wants to go off to university in the Fall and start living her life. Please help give Kayla the chance to keep looking for answers and treatment.. Please. Help her on her journey..
Thank you
The Johnston's
After over a year of tests and scans, Kayla was diagnosed with Ehlers-Danlos Syndrome (EDS); a condition affecting the production of collagen which is important for tissue formation and structure within the body. Months passed and not much was working to curb her constant pain.
With only a few months into the New Year, Kayla was re-admitted to the hospital and now diagnosed with a new condition called Superior Mesenteric Artery (SMA) Syndrome; a rare digestive disorder only affecting about 500 people.
While these medical conditions have catastrophically interrupted her life and have resulted in dozens of extended in-patient hospitalizations, Kayla enforces strict rules that “only positive and happy people” are welcome to visit her when she is unwell. Her positivity and enthusiasm about living her life despite her illness, is absolutely contagious.
Kayls has an opportunity to go to the Mayo Clinic in the United States and our insurance company will only cover $3000.. The initial deposit is $7000 and the whole cost can be up to $20,000 plus , although we will try to apply for a loan and get this covered someway, we are still dealing with the costs of her being ill over the last 2 years. We are reaching out for help. Kayla has had to fight with Dr's to be listened too and to get them to take action.. Now she is in the adult world and everyone has stopped looking and just wants to make sure she has nutrition and as long as she can pee with a catheter and have a bowel movement with help she is okay.. She has 2 tubes in her stomach one for feeding and one for venting. She is now being fed through a PICC line in her arm with TPN. That is not good enough for an 18year old strong woman who wants to go off to university in the Fall and start living her life. Please help give Kayla the chance to keep looking for answers and treatment.. Please. Help her on her journey..
Thank you
The Johnston's
Organizer
Leigh Ann Johnston
Organizer
Barrie South, ON
