Our sweet Ashton was diagnosed in June 2017 with Transitional Hepatoblastoma a rare liver cancer. He is 11 yrs. old and battling cancer for the second time.
Hepatablastoma is 1% of all kids cancer but the blend Ashton has is actually about .20% not even a whole half a percent of kids cancer. He is absolutely one of a kind so there is no surprise, he would have something that would puzzle everyone.
Ashton is an awesome kid! He loves his Fortnite and his friends. He loves science and wants to be a doctor and what an awesome doctor he would be with all the experience he has gained in the last couple of years. He will bust out in song and dance in front of anyone anywhere. His favorite person to pick on is his dad.
Ashton spent the second half of 2017 getting chemo, a life saving transplant, and then more chemo. He did an adult chemo pill the beginning of 2018, then had liver rejection and finally the last part of 2018 he was able to be a kid and enjoy life a little bit. We knew there was a positive area of cancer on his inferior vena cava after transplant, but we thought the chemo we did after transplant had taken care of it. Unfortunately last month we found out its there and a few other spots.
He had Surgery on Feb. 27th,2019 for these spots and we found more cancer than anyone anticipated. Our oncologists are going above and beyond looking for help on Ashton's puzzle. IV Chemo is not an option, so our docs have really reached out looking for new options. The plan is to start a pretty new adult liver cancer med as soon as things are straight with insurance. This med cost $18k a month, and we are still waiting to hear what insurance is covering. The docs can't offer a good prognosis because this is all new territory, but we have faith Ashton will keep overcoming because God is walking with us.
Financially, things are rough! We are about to hit two years since this all started. We live in North Mississippi and had just moved from Belle Chasse, La. the month before Ashton was diagnosed. Ashton is mainly treated at Texas Children's where he had his liver transplant so we have to travel there often. Our lives have always needed both me and my husband to work and that just has not been possible. With 4 surgeries, 2 liver biopsies, doctors appts. and labs at some points twice a week, 3 hospitals stays, and 6 trips to Houston just since April 2018 all while recovering from fighting, I have no idea what to expect while we are actively fighting. From August till Jan., I was able to help out a little substituting at his school, but I won't be able to sub again till Ashton can go back and that all depends on the side effects he does or does not have to the adult liver med.
Finances are definitely a balancing act of trying to keep Ashton as happy as possible, having money for all the medical expenses and travel, and just paying the bills that keep a roof over our heads and lights on. Truly, the credit cards and everything else we maxed out the last two years, I throw them in the trash as soon as I see them. I just really can't do anything about them at the moment. Right now Tristan's car is broke and our outside AC unit is broke so sometimes its seems more like an Avalanche than a balance. Everything always seems to work out thanks to everyone who has already helped, but there is so much going on right now that the stress is really working on me and Daniel both.
Please Share at the least and get the word out! Anything you can do $5, $10 it all helps!
Thank you all so much for the prayers, shares, and any help you can give.There are just no words for what it really means to us.