I would normally never be asking for this but I am having a lot of health issues and need to be able to be able to have the care I need. Some of you know my medical history others may not. I have serval medical conditions which are progressively getting worse. I have EDS which stands for Ehlers Danlos Syndrome basically what it is is that my body produces faulty collagen which is used to keep all of your joints and ligaments in place mine constantly sublex or dislocate due to my condition getting worse my doctors are sending me down to one of the only specialists in the country for my condition in Jacksonville Florida this will be one of many trips down to Florida. As well as the EDS. I also have POTS or Postural Orthostatic Tachycardia Syndrome which basically means my body can not regulate my blood pressure or pulse because of this I have been to the ER multiple times from passing out and having high blood pressure and pulse and have basically been bed bound. The doctors are wanting to place a port for me to be able to receive nightly infusions at home from a home health nurse as well as me using a wheelchair to manage my symptoms until I can get a better control of my symptoms I will also be going to one of the only few hospitals in the country that Specialize in POTS at John Hopkins in Maryland this will also be one of many trips out of state. These trips and medical needs are going to add up and likely not fully covered by insurance. My husband Colton who is my main supporter will need to be able to take time off of work if nessacry and his PTO will run out eventually.
I really appreciate all of your love and support I would not be able to do this without all of you
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